This Is MS Multiple Sclerosis Knowledge & Support Community

shucks, I had the angio done in August. If I could be honest, knowing what I know now I'm not sure that I would have had it done because I think that in my case I might have been able to control MS with just diet, massage, etc., but I would never have learned that if I hadn't first done the angio. I...

After I was liberated I continued to test and change my diet and supplements, with the assumption that the blocked veins had been caused by poor nutrition and years or decades of undiagnosed celiac disease. I am mostly symptom free now. If ever I start to feel the tingles coming I can generally pinp...

I have been there for CCSVI testing - still waiting for results. The cost for the testing is $2500. They don't do the procedure there but are working with a doctor in San Diego to so the procedure and I was told it would cost $11,500.

all 3 of my episodes were preceded by neck injuries - not major ones, but after some time with the chiro I found significant relief.

I'm interested in this as well. I have always had low blood pressure and a low resting heart rate. I exercise but not enough to justify a heart rate "like a marathon runner" as different health care providers have noted.

I just made an appointment for CCSVI testing in San Diego at Dr. Hubbard's Clinic. I was wondering if anyone else here has already been.
Thanks!

I also noticed that when I was in the desert a few weeks ago (Palm Springs) I had no symptoms at all - usually I have a little tingling and numbness at a minimum. Any ideas??

For me, in the past when I get my heart rate up my optic neuritis comes back, then goes away as soon as my heart rate returns to normal.

I agree with ndwannabe - is there a difference between "MRV" and "venography"?

Thank you so much for your help.

I just saw on the Hubbard Foundation website that the cost is actually $2500. I must have misheard the guy on the phone yesterday.

The clinic in San Diego is called "The Hubbard Foundation". I just learned of them a day or two ago. They are only doing the testing, not the procedure. I understand that the doctor's own son was diagnosed with MS.

Thanks for the opinions.. keep them coming!

Hi All, I am trying to decide my next action and could use some advice. I am wondering what is the feeling about whether it is important to do the full Haacke Protocol testing or if the doppler ultrasound is enough. For the full testing I would go to the clinic in San Diego and pay $2900 out of pock...

After she was diagnosed with celiac, did she start eating a lot more legumes? This could have been a major aggravater. I would also refer you to DIRECT-MS.org for nutritional strategies and supplements.

Yes. When I was 4 I fell off a slide onto a concrete floor - lost vision in both eyes for about an hour (about what I recall). Never thought about it again until now and wonder if I set things into motion. 2 years ago I picked up all 3 of my kids at once and felt my neck crunch. MS symptoms appeared...

What a great kid! Thanks for sharing this.