Search found 339 matches

by BooBear
Thu Aug 14, 2014 4:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Greetings from a name perhaps forgotten!
Replies: 8
Views: 1391

Re: Greetings from a name perhaps forgotten!

Hi, blossom!!!

The cat has his tongue, as I was "going to be in a wheelchair in six months" if I went off all drugs completely and pursued the Liberation Treatment. Well, unless I am in an invisible wheelchair, that didn't happen. :)

Did you continue the drug therapies post-treatment?
by BooBear
Tue Aug 12, 2014 2:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI RESEARCH here
Replies: 190
Views: 124892

Re: CCSVI RESEARCH here

^^^ HERE HERE ^^^^^
by BooBear
Tue Aug 12, 2014 1:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Greetings from a name perhaps forgotten!
Replies: 8
Views: 1391

Greetings from a name perhaps forgotten!

It has been nearly four years since I have posted anything in this forum. My neglect can be attributed to, well, living life! I had the Liberation Treatment performed in Albany on August 13, 2010. Since then, I have taken zero- ZERO- meds to manage my MS. I have also had zero relapses. Frankly, I am...
by BooBear
Wed May 04, 2011 9:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: chemo vs ccsvi procedure
Replies: 11
Views: 1923

I underwent chemo via oral cladribine for two years prior to treatment. I do not know if I have restenosed- we will find out on June 7. :)

I will say, though, that chemo changed my body forever. I am far worse for the chemo than I can ever say I benefitted from it.
by BooBear
Wed May 04, 2011 9:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 11817

I posted my question on BCBS before I found this thread. Now I am just pissed.

So if the dx is not MS, are these still treatable conditions? Because I would hope that is the case.

I love that BCBS will pay for a drug that hurts my heart, but not for a procedure to fix my veins.
by BooBear
Wed May 04, 2011 9:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BCBS no longer covering CCSVI treatments
Replies: 9
Views: 2235

BCBS no longer covering CCSVI treatments

Just found out that BCBS is no longer covering CCSVI treatments. Wonder why that is the case?
by BooBear
Fri Apr 15, 2011 8:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Study shoots hole in 'liberation' theory
Replies: 66
Views: 8006

You should know that the major problems are the complications after operation and the long-term effct of the operation. These veins have never been treated before and we can see lots of complications. Veins get collapsed, scarring, intimal hyperplasia, etc. Many patients experienced initial improve...
by BooBear
Fri Apr 15, 2011 8:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Study shoots hole in 'liberation' theory
Replies: 66
Views: 8006

You should know that the major problems are the complications after operation and the long-term effct of the operation. These veins have never been treated before and we can see lots of complications. Veins get collapsed, scarring, intimal hyperplasia, etc. Many patients experienced initial improve...
by BooBear
Thu Apr 14, 2011 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A request
Replies: 56
Views: 6938

Sending all the love and warm thoughts I can muster! Hang in there!!!!
by BooBear
Thu Apr 14, 2011 7:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Study shoots hole in 'liberation' theory
Replies: 66
Views: 8006

I made a comment nearly a year ago that I still stand by. If CCSVI is the cause of or consequence of MS is irrelevant from a treatment perspective. If there is a condition that requires treatment, treat it. No one had an issue with drugs prescribed for the various effects of this disease, from fatig...
by BooBear
Mon Mar 28, 2011 1:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Six month milestone for BooBear
Replies: 8
Views: 1464

Thanks so much, everyone. I really believe my condition changed for the better after the surgery...but really turned the corner when I quit smoking three months ago (stop abusing your vascular system! Dummy! LOL). I seriously have never slept sounder, walked farther, felt more energetic and felt mor...
by BooBear
Mon Mar 28, 2011 1:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Alberta MS Society says "We are sorry"
Replies: 50
Views: 6968

Here! Here!
by BooBear
Mon Mar 28, 2011 6:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Alberta MS Society says "We are sorry"
Replies: 50
Views: 6968

I agree that donations must be significantly lower for the MS Society to issue an apology...that, or the upcoming studies have favorable data and the Society needs to save face.

Either way, never another dime. Never.
by BooBear
Mon Mar 28, 2011 5:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117915

Cece, I am so glad for you!! Welcome to the club!
by BooBear
Mon Mar 28, 2011 5:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Six month milestone for BooBear
Replies: 8
Views: 1464

Six month milestone for BooBear

Hi friends! I haven't posted in a while because life is so incredibly busy! I am traveling like crazy for work! But I feel AWESOME! Energy- thru the roof. Pain? Nope. None. Abilities? All there, with exception of my left hand (and those who followed me know that I had no expectations of improvement ...