This Is MS Multiple Sclerosis Knowledge & Support Community

Because of the desire to wait for proof before becoming convinced of the merits of CCSVI, a person is assumed to be opposed to CCSVI. I've been dealing with that the entire time that CCSVI has been discussed on thisisms. No matter how many times you voice hope for the future of CCSVI it seems that ...

I, however, am not getting worse each day. I am completely stable and in a lot better shape than a few years ago thanks to existing medications. I think you are wrong...bud. If you have m.s., it has been shown in studies that even during periods of seeming remission, active damage is still occurrin...

While I respect your right to wait for decades of double-blind studies to conclusively prove the validity of the CCSVI theory (and yes, it's just a theory now); there's an aspect you are overlooking. In your opinion bud. I know many folks with relaspse-remitting ms (as is mine) that are functioning...

Hey folks, sorry for stirring up so much dust. Maybe I should have posted in another thread. I'm just not gaga over this procedure, and I do trust in my Neurologist because he has been right regarding my treatment for over 10 years now. He is a research scientist as well, and I put my faith in his e...

It sounds like you've been burned by a lot of neuros and maybe had some bad luck with meds. I lucked out I guess. But for the record, when I went off meds for a few months I felt worse. And when I got back on an ABC, I felt better very quickly. So I realized the correlation, and it works for me. Thi...

Until I read further on CCSVI I'll go along with what the M.S. society of Canada has to say. Their comments reflect about what I'm feeling.

http://www.mssociety.ca/cgi-bin/MasterP ... 21_faq.htm

I am very happy they did the trick for you though. However, i am not sure you are doing well because of them. Well, I trust my Neuro completely. He is involved in research, both at the M.S. clinic in Calgary, Alberta and the University of Calgary. I think my neurologist (and me) knows better than y...

Thanks Johnson for your welcome. Curious though, if the Stanford death had nothing to do with the procedure why would Dr. Dake quit doing them? Anyway, I will read more. I just like to have a few years of solid research to go by is all.

Not sure what drugs you are talking about, but I haven't heard of any deaths caused by the ABC treatment drugs. I can only comment that both copaxone and betaseron have been extremely effective for me. And I just want to reserve judgement on the procedure until I know its track record for success.

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I've had M.S. for 24 years, off work for 14. There is nothing I'd like better than a cure for M.S. However, I'm very reluctant to fully embrace this procedure for a lot of reasons. But the main one concerns trials. I think we need to have some patience for the research to come to fruition. The death...