This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for all the information. I am in Auckland. I did asked my GP about referral previously, but no luck. Sit and wait is pretty much the feeling in the air. So I will try as you say somebody who is pro CSSVI. This is really good news.

Great news kiwi about testing,
How did you get the referral was it from the neuro or gp for the scan and was it venography or mrv? I have not had success from my contacts so far Good luck with your test

Hi Nico and all the best for your surgery.

I am located in NZ and am hopefull that we get this surgery off the ground asap as well.

Interesting reading, here are my few odd things ......I been dx2008 dec, (im over 30 now) have time to time had episodes of "crunchy" neck when I turn my head, no pain with it though. It goes away for awhile then it is there again. I have soft lump on a right side of my neck, been there si...