Search found 40 matches

by billf
Tue Sep 19, 2006 10:41 am
Forum: General Discussion
Topic: prescribing statins for MS
Replies: 7
Views: 3177

I'm really interested in whether anyone knows of a Doc in the US that will prescribe for someone without high cholesterol.
by billf
Thu Sep 14, 2006 12:45 pm
Forum: General Discussion
Topic: prescribing statins for MS
Replies: 7
Views: 3177

prescribing statins for MS

Does anyone know of a Neuro (or other Doc) in Colorado who has prescribed, or will prescribe, statins for someone who does NOT have high cholesterol, but who does have MS?
by billf
Thu Sep 14, 2006 12:43 pm
Forum: Statins
Topic: prescribing statins for MS
Replies: 6
Views: 17606

prescribing statins for MS

Does anyone know of a Neuro (or other Doc) in Colorado who has prescribed, or will prescribe, statins for someone who does NOT have high cholesterol, but who does have MS?
by billf
Thu Mar 23, 2006 10:32 am
Forum: Drug Pipeline
Topic: FTY720
Replies: 4
Views: 3689

Is there any data on reducing progression to disability? I think everyone is coming to accept that reduction of lesion load and relapse rate do not necessarily indicate a reductino in the overall progression of the disease. If this is to be the new standard of MS treatments, they should use the new ...
by billf
Mon Mar 13, 2006 7:21 am
Forum: General Discussion
Topic: neuropathic pain
Replies: 22
Views: 18240

Thanks for the feedback. So far I don't hear anyone describing what my wife has. Yes, she does have MS - we know that already. And, yes, whe does have MS pain that comes and goes, especially when she is tired. What is confusing us now is pain that gets triggered when she sits or lies in a certain po...
by billf
Fri Mar 10, 2006 8:05 am
Forum: General Discussion
Topic: neuropathic pain
Replies: 22
Views: 18240

neuropathic pain

My wife was dxd 6 years ago. For the last 3 years she has had chronic nerve pain (aching, burning, sensitivity, etc.) down one leg or the other (never both) to the toes. It's almost always there at some level, but can be fired up immediately by certain activities or positions (sitting, bending forwa...
by billf
Fri Jan 27, 2006 11:16 am
Forum: General Discussion
Topic: Myelin in multiple sclerosis is developmentally immature
Replies: 7
Views: 3528

What about all the recent research that suggest that MS is more than just a disease of the Myelin. Let's not forget that!
by billf
Tue Aug 23, 2005 10:13 am
Forum: General Discussion
Topic: GM atrophy and disability
Replies: 1
Views: 2607

GM atrophy and disability

Art posted an interesting study (http://www.neurology.org/cgi/content/abstract/65/2/280) on the Boston Cure site finding that Grey Matter (GM) atrophy (axonal death) is the biggest factor in MS disibility. This raises an interesting question: if axonal death is responsible for most of the disability...
by billf
Tue Feb 15, 2005 1:08 pm
Forum: General Discussion
Topic: transverse myelitis
Replies: 5
Views: 4850

OddDuck/CCmom
Thanks for the info.
Does the presence of brain lesions signify definite MS, or are there other things which might cause brain lesions (such as Lyme disease)?
by billf
Tue Feb 15, 2005 9:51 am
Forum: General Discussion
Topic: transverse myelitis
Replies: 5
Views: 4850

transverse myelitis

My wife was dignosed with MS 6 years ago. Her sister was diagnosed with MS two years ago, but has recently been re-diagnosed as having transverse myelitis. A quick online review of TM makes me wonder how Doctors can reliably distinguish between the two. So, maybe my wife also has TM instead of MS. A...
by billf
Tue Jan 25, 2005 7:26 am
Forum: General Discussion
Topic: Trial funding
Replies: 3
Views: 2917

Trial funding

Shall we put our heads together and brainstorm ways that funding can be found for trials that are meaningful to the MS community but not necessarily for the big pharma companies? We currently have these big pharmas funding a trail of rebif vs. copaxone (<sarcasm>so that we can find out that one is 3...
by billf
Tue Nov 30, 2004 2:07 pm
Forum: Drug Pipeline
Topic: A USC-invented vaccine for multiple sclerosis New Trial
Replies: 12
Views: 6103

I too read that this trial failed and was cancelled. I don't remeber the source but dig and you will find it.
by billf
Wed Nov 17, 2004 1:31 pm
Forum: General Discussion
Topic: gray matter affected in earliest stages of MS
Replies: 103
Views: 42121

Bromley, I understand you concern, but disagree with your conclusion that we have even less to be hopeful for now than we did before. Yes, it is frustrating that some of the new discoveries might lead us to realize that the current therapies are useless. But the extremely exciting thing is that we a...
by billf
Wed Nov 17, 2004 11:56 am
Forum: General Discussion
Topic: gray matter affected in earliest stages of MS
Replies: 103
Views: 42121

It is exhilarating to see an age-old MS paradigm gradually being brought down, like the statue of a fallen dictator. Let me be a constant pest reminding all that we should not only share these ideas and energy with each other in this forum, but also push on the beurocracies that are still blindly fo...
by billf
Tue Nov 16, 2004 8:31 am
Forum: General Discussion
Topic: gray matter affected in earliest stages of MS
Replies: 103
Views: 42121

gray matter affected in earliest stages of MS

For all the people who are still seeing MS as an autoimmune attack on myelin (modled by EAE in mice). Wake up!! Times are changing!!
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