Search found 5 matches

by JaneM
Sat Oct 16, 2010 8:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 283719

CCSVI TRACKING 10/14/2010

MS HISTORY Name Jane M Male/Female: F Age: 56 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): RRMS 4/97 SPMS 1/05 Lesion locations (most affected side, if known), number: MS treatments: Avonex 97 - 05, amantadin -98, baclofen - 2003, gabapentin - 2007 MS symptoms before s...
by JaneM
Thu Aug 12, 2010 8:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588375

Re: Blood Brain Barrier Permeability

This discussion is irrelevant. I do not treat MS, I treat ccsvi and its symptoms like fatigue.....any neurologists know what causes it? or how to treat it? it is one of the consistent improvements that patients describe. To take this literally: Neurologists have offered a couple suggestions for wha...
by JaneM
Wed Jul 07, 2010 9:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588375

CCSVI

If not then why am I being denied treatment for CCSVI? Have you been denied? You are in NY, there are more ccsvi-friendly docs there than here in the Midwest! Maybe ask at the facebook ccsvi thread, I saw two people there yesterday offering to pm names of docs, one was in NY. Thanks! I am in the pr...
by JaneM
Wed Jul 07, 2010 1:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588375

in truth, we just do not know yet. We have not even had one research paper focused on the valve issues. We do not have proper equipment By proper equipment, do you mean the invention of a venous stent or proving the value of ivus and cutting balloons or is there something else out there? If your ne...
by JaneM
Wed Apr 07, 2010 3:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For anyone scheduled with Dr. Sclafani...
Replies: 53
Views: 12388

Dr. Scalfani

drsclafani wrote:I AM GOING TO SPEAK ABOUT ISSUES SURROUNDING MY SHUT DOWN ON MY USUAL SITE. WE WILL SPEAK ABOUT IRBs, AND OTHER ISSUES GERMAINE TO THIS
Is there anything that the people interested in seeing that diagnosis and treatment for CCSVI go forward can do? How do we support you?