Search found 220 matches

by zen2010
Thu Dec 05, 2019 11:19 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 12
Views: 500

Re: balance and gait improvement

Hi, Here is the first feedback from the person who tried the Lokomat : "I only used the Lokomat for 10 minutes today. The first part of the session was measuring and adjusting the machine. I should be ready for a longer period next week. Even with the small amount of time, my legs felt like they wer...
by zen2010
Thu Nov 28, 2019 7:38 am
Forum: Daily Life
Topic: Robocalls
Replies: 4
Views: 71

Re: Robocalls

Same here (I also get spam calls). Some people spend a long time to explain they are not interested. Some say to hold on, then wait until the guy hangs up=>I think this is kind of sadist. I don't do that. I'm a good human being. I immediately hang up. This is straight, fast, clean. The animal does n...
by zen2010
Thu Oct 24, 2019 10:39 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, I was informed Montel Williams was in Montreal clinic yesterday. Too bad I was not there. I have a lot of questions... They apparently asked him how he felt the PONS helped him. From what laura (my former physiotherapist) said, Montel was vague, telling them that it just takes a lot of work and ...
by zen2010
Fri Oct 11, 2019 1:26 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, I just received the below message on Whatsapp from one MSer I met in Montreal clinic. I posted this today on Secondary progressive MS Facebook page: For those of you who have followed and wondered about the PONS device over the last 5+ years, I would like to tell you about my experience. I have ...
by zen2010
Mon Oct 07, 2019 6:13 pm
Forum: General Discussion
Topic: Spinal cord
Replies: 1
Views: 159

Re: Spinal cord

I've met MSers with spinal cord lesions and without spinal lesions. All of them had severe gait issues. This study is showing that gait issues are related to lesions located at the spinal cord. So I am confused... Are MSers with gait issues and without spinal cord lesions can't walk cause of poor ba...
by zen2010
Mon Sep 30, 2019 8:21 am
Forum: General Discussion
Topic: balance and gait improvement
Replies: 12
Views: 500

Re: balance and gait improvement

You're right, one PoNS clinic was recently opened in Calgary. Montel Williams has been using the device for a looooong time. Also, he is a workout addict. Most of all, don't forget he is not the face of MS! We are all different. I believe in neuroplasticity. I really think brain stimulation can help...
by zen2010
Sun Sep 29, 2019 4:46 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 12
Views: 500

Re: balance and gait improvement

She has gait issue. She is around 50 years old + she is using 2 crutches.
Other than that she looks fine.
by zen2010
Sun Sep 29, 2019 12:45 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 12
Views: 500

balance and gait improvement

Hi, One MSer living in US, tried the PoNS (https://www.thisisms.com/forum/viewtopic.php?f=1&t=30320) As she hasn't seen any positive result, she told me she would try this: https://www.hocoma.com/solutions/gait-balance/ I think that's interesting, so I share... Just want to say I don't work for this...
by zen2010
Sun Sep 08, 2019 4:22 pm
Forum: General Discussion
Topic: Neufit Electrical Stimulation & Neubie
Replies: 0
Views: 134

Neufit Electrical Stimulation & Neubie

Hi, Just want to share something I found while I was searching some stuff about Dr Terry Wahls. https://terrywahls.com/learn-more-about-neufit-electrical-stimulation/ She is using electrical stimulation. I am very suspicious regarding what is being said in the extract below... Because of the neurolo...
by zen2010
Sun Sep 01, 2019 5:23 pm
Forum: Ampyra
Topic: Would like to hear from people using Ampyra
Replies: 22
Views: 22722

Re: Would like to hear from people using Ampyra

I ve been taking Ampyra (2*10 mg per day) for 6 years.
I ve never felt good or bad effects while on it.

However, today, I forgot to take my 5pm pill.
Result: I am feeling so bad! I can barely walk!!!
by zen2010
Fri Aug 30, 2019 3:36 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, As promised, here is my feedback after 8 weeks with the PoNS: Actually, it's gonna be fast. As I fell in the stairs last week, my ankle got a bit twisted, so I was able to perform only 50% of the assessment. So, in summary, my balance was worst and my walking hasn't really changed. Anyway, asses...
by zen2010
Tue Aug 20, 2019 3:47 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, FYI : starting next week, the pons device cost will be cut in half as the cost was too high to recuit patients. New cost will be around 15K Helius needs data to get FDA's approval. As they plan to collect data from participants, cost must be affordable. The clinic in Montreal is almost empty....
by zen2010
Tue Aug 13, 2019 9:30 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 2377

Re: Can your life ever be normal again?

Hi, I was just giving my opinion about people with EDSS <1, telling that MS can lead to even a better life. I think these people don't really know what is it to have "strong MS". It reminded me a cute lady (she is a famous model) saying on a TV show, that people with overweight should not consider o...
by zen2010
Fri Aug 09, 2019 11:37 am
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

Did a reasonable number of the people you met have favorable results? No Not only my case but also the numerous MSers (&others)I met in the clinic who came cause of Doidge's book. Sorry Elliot for my very short answer. It's just that me + many others patients, are quite angry with Norman Doidge and...
by zen2010
Wed Aug 07, 2019 5:41 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 66
Views: 6439

Re: Experimental Tongue Therapy Helps Restore Brain Function

ElliotB wrote: Did a reasonable number of the people you met have favorable results?
No
Not only my case but also the numerous MSers (&others)I met in the clinic who came cause of Doidge's book.