Search found 227 matches

by zen2010
Thu Feb 20, 2020 12:31 pm
Forum: Drug Pipeline
Topic: Masitinib for PP/SP MS
Replies: 0
Views: 36

Masitinib for PP/SP MS

AB Science Announces Positive Phase 2B / 3 Results for Masitinib in Progressive Forms of Multiple Sclerosis Masitinib significantly slows the progression of disability on the EDSS score in patients with primary progressive multiple sclerosis (PPMS) and secondarily non-active multiple sclerosis (nSPM...
by zen2010
Fri Feb 14, 2020 12:45 am
Forum: Daily Life
Topic: The definition of life
Replies: 0
Views: 57

The definition of life

by zen2010
Tue Feb 11, 2020 11:28 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 760

Re: balance and gait improvement

Hi, Here is the last feedback from the person who tried the Lokomat: I finished my PT. Using the Lokomat only once a week was not beneficial for me, but that's not to say it wouldn't help others. Any improvements I had only lasted a day or two. I think if I used the Lokomat 3x a week, I might have h...
by zen2010
Fri Feb 07, 2020 1:08 am
Forum: General Discussion
Topic: MyoSwiss electrical assistance
Replies: 0
Views: 51

MyoSwiss electrical assistance

Hi,

FYI, this device should be on the market (In Europe) next year.



Weight:5.5 Kg
Time to wear the device: 3 minutes
Cost: I have no idea but I guess it's gonna be huge
by zen2010
Sat Jan 04, 2020 8:54 am
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 70
Views: 8985

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi NHE,

you are 100% right.

I wrote this post only to show that on December 31th, 2019, an article (one more) is claiming the PoNS is ineffective.
I believe the pricing is an other topic.
by zen2010
Fri Jan 03, 2020 11:44 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 70
Views: 8985

Re: Experimental Tongue Therapy Helps Restore Brain Function

From one guy on Facebook: I own shares and also subscribe to this feed which takes a 'short' view of the Helius stock. Pretty interesting reading. Hard for me to tell what's actually going on. On one hand, the continued US military investment in TBI studies is promising, on the other hand, if what t...
by zen2010
Mon Dec 23, 2019 10:20 am
Forum: General Discussion
Topic: Unexpected effect of MS drug
Replies: 0
Views: 178

Unexpected effect of MS drug

https://news.ki.se/unexpected-effect-of-ms-drug?_ga=2.261598603.740283883.1577123303-2100459724.1577123303 Researchers at Karolinska Institutet in Sweden have studied the mechanism of action of a drug used to treat multiple sclerosis. The results, which are published in the journal Nature Communicat...
by zen2010
Thu Dec 05, 2019 11:19 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 760

Re: balance and gait improvement

Hi, Here is the first feedback from the person who tried the Lokomat : "I only used the Lokomat for 10 minutes today. The first part of the session was measuring and adjusting the machine. I should be ready for a longer period next week. Even with the small amount of time, my legs felt like they wer...
by zen2010
Thu Nov 28, 2019 7:38 am
Forum: Daily Life
Topic: Robocalls
Replies: 4
Views: 146

Re: Robocalls

Same here (I also get spam calls). Some people spend a long time to explain they are not interested. Some say to hold on, then wait until the guy hangs up=>I think this is kind of sadist. I don't do that. I'm a good human being. I immediately hang up. This is straight, fast, clean. The animal does n...
by zen2010
Thu Oct 24, 2019 10:39 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 70
Views: 8985

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, I was informed Montel Williams was in Montreal clinic yesterday. Too bad I was not there. I have a lot of questions... They apparently asked him how he felt the PONS helped him. From what laura (my former physiotherapist) said, Montel was vague, telling them that it just takes a lot of work and ...
by zen2010
Fri Oct 11, 2019 1:26 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 70
Views: 8985

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, I just received the below message on Whatsapp from one MSer I met in Montreal clinic. I posted this today on Secondary progressive MS Facebook page: For those of you who have followed and wondered about the PONS device over the last 5+ years, I would like to tell you about my experience. I have ...
by zen2010
Mon Oct 07, 2019 6:13 pm
Forum: General Discussion
Topic: Spinal cord
Replies: 1
Views: 237

Re: Spinal cord

I've met MSers with spinal cord lesions and without spinal lesions. All of them had severe gait issues. This study is showing that gait issues are related to lesions located at the spinal cord. So I am confused... Are MSers with gait issues and without spinal cord lesions can't walk cause of poor ba...
by zen2010
Mon Sep 30, 2019 8:21 am
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 760

Re: balance and gait improvement

You're right, one PoNS clinic was recently opened in Calgary. Montel Williams has been using the device for a looooong time. Also, he is a workout addict. Most of all, don't forget he is not the face of MS! We are all different. I believe in neuroplasticity. I really think brain stimulation can help...
by zen2010
Sun Sep 29, 2019 4:46 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 760

Re: balance and gait improvement

She has gait issue. She is around 50 years old + she is using 2 crutches.
Other than that she looks fine.
by zen2010
Sun Sep 29, 2019 12:45 pm
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 760

balance and gait improvement

Hi, One MSer living in US, tried the PoNS (https://www.thisisms.com/forum/viewtopic.php?f=1&t=30320) As she hasn't seen any positive result, she told me she would try this: https://www.hocoma.com/solutions/gait-balance/ I think that's interesting, so I share... Just want to say I don't work for this...