Search found 209 matches

by zen2010
Tue Aug 20, 2019 3:47 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 59
Views: 4718

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, FYI : starting next week, the pons device cost will be cut in half as the cost was too high to recuit patients. New cost will be around 15K Helius needs data to get FDA's approval. As they plan to collect data from participants, cost must be affordable. The clinic in Montreal is almost empty....
by zen2010
Tue Aug 13, 2019 9:30 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 1931

Re: Can your life ever be normal again?

Hi, I was just giving my opinion about people with EDSS <1, telling that MS can lead to even a better life. I think these people don't really know what is it to have "strong MS". It reminded me a cute lady (she is a famous model) saying on a TV show, that people with overweight should not consider o...
by zen2010
Fri Aug 09, 2019 11:37 am
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 59
Views: 4718

Re: Experimental Tongue Therapy Helps Restore Brain Function

Did a reasonable number of the people you met have favorable results? No Not only my case but also the numerous MSers (&others)I met in the clinic who came cause of Doidge's book. Sorry Elliot for my very short answer. It's just that me + many others patients, are quite angry with Norman Doidge and...
by zen2010
Wed Aug 07, 2019 5:41 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 59
Views: 4718

Re: Experimental Tongue Therapy Helps Restore Brain Function

ElliotB wrote: Did a reasonable number of the people you met have favorable results?
No
Not only my case but also the numerous MSers (&others)I met in the clinic who came cause of Doidge's book.
by zen2010
Wed Aug 07, 2019 12:11 pm
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 59
Views: 4718

Re: Experimental Tongue Therapy Helps Restore Brain Function

Hi, I will post my feedbacks regarding the PoNS treatment as I started it 4.5 weeks ago in Montreal. I will be glad to answer your questions if any. A facebook group was created to discuss this treatment (Montreal PoNS group: https://www.facebook.com/groups/302880607309645/) => if you're interested,...
by zen2010
Mon Aug 05, 2019 10:37 am
Forum: Stem Cells
Topic: Need help
Replies: 2
Views: 139

Re: Need help

Sorry, I misread.
HSTC is not "peptide stem cell"
by zen2010
Sun Aug 04, 2019 1:22 pm
Forum: Stem Cells
Topic: Need help
Replies: 2
Views: 139

Re: Need help

Hi Selma Blair is going for it https://www.healthline.com/health-news/actress-selma-blair-undergoing-stem-cell-treatment-for-multiple-sclerosis#What-researchers-know-about-HSCT A common misconception is that HSCT will reverse MS progress. It has only shown success in stopping MS activity. “Bone marr...
by zen2010
Sun Jul 28, 2019 7:33 am
Forum: General Discussion
Topic: Lipoic acid
Replies: 3
Views: 814

Re: Lipoic acid

Hi, "Small study shows that treatment with an anti-oxidant (lipoic acid) slows brain tissue loss in individuals with secondary progressive MS" https://mssociety.ca/research-news/article/small-study-shows-that-treatment-with-an-anti-oxidant-slows-brain-tissue-loss-in-individuals-with-secondary-progre...
by zen2010
Tue Jul 23, 2019 6:28 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 1931

Re: Can your life ever be normal again?

Hello,

Hope my comment won't hurt anybody.

I kind of agree with Robbie.

Zyklon,
If i remember well, your EDSS is 1 or even less.
If you were at 6, I'm pretty sure your speech would be different...


Cheers
by zen2010
Tue Jul 16, 2019 6:36 am
Forum: Drug Pipeline
Topic: MSRV Retrovirus, phase 2
Replies: 53
Views: 19890

Re: MSRV Retrovirus, phase 2

Now it seems pretty clear that HERVs are the cause of microglial activation (the root cause of progression) and just a couple of years ago this was unknown. Hi Frodo, I trully hope, more than anybody, that Geneuro will provide something efficient to us. BUT, there is a HUGE difference between what ...
by zen2010
Fri Jul 12, 2019 10:12 am
Forum: General Discussion
Topic: Cooling vest
Replies: 2
Views: 94

Cooling vest

Hi, As you all know, heat is our biggest enemy. => I met some MSers who strongly advise me to get a cooling vest. See the description in the video below (8'10'' in the video) https://www.youtube.com/watch?v=vAajNmciVJg It looks very interesting, so I will get one from amazon later today. Are some of...
by zen2010
Tue Jul 02, 2019 9:56 am
Forum: Drug Pipeline
Topic: MSRV Retrovirus, phase 2
Replies: 53
Views: 19890

Re: MSRV Retrovirus, phase 2

Hello, 1)I can read (Page 20) : "3.8% of patients with 12-week confirmed worsening in neurological disability from CHANGE-MS baseline to week 48 ANGEL (at 18mg/Kg)" =>So it's not working for everyone 2)I can also read (Page 21): Adverse Events for 44.2% of patients. That's HUGE! Point "1)" seems to ...
by zen2010
Thu Jun 20, 2019 6:15 am
Forum: Humor
Topic: 3 stages of life
Replies: 1
Views: 139

3 stages of life

by zen2010
Fri Jun 14, 2019 9:57 am
Forum: General Discussion
Topic: Sacha Inchi - perhaps one of the world’s healthiest superfoods + Gooseberries
Replies: 2
Views: 152

Re: Sacha Inchi - perhaps one of the world’s healthiest superfoods + Gooseberries

Thks for this info Elliot,

I didn't know about this product.

But...

problem comes from the price (in France): 4 USD (3 euros) for only 50 g.

It's cheaper from your site, but shipping costs for us (Europe) are huge:(
by zen2010
Wed Jun 05, 2019 9:36 pm
Forum: General Discussion
Topic: has anyone heard of Digestacure ??
Replies: 4
Views: 198

Re: has anyone heard of Digestacure ??

I recently was told about a product called digestacure and was hoping someone has heard of this product. Maybe even someone here has tried it. I searched this site and cant find anything on it. Seems interesting to say the least. thanks for any info, Chris https://cfsremission.com/2017/06/30/a-revi...