This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Cece, I was just trying to say what you said but in a different way. I can't get the underline to work, so anything in caps below isn't shouting!! I meant that treatment or therapies of ANY kind for ANY disease/problem don't work for everyone all the time. And that our understanding (i.e. study) ...

Hi Pollyanna - I don't work for the MS Society, but I do volunteer work for them. I sincerely hope that our (mine, doctors, the world's) increasing knowledge about CCSVI helps lead us to what we are all striving for: an end to MS. Just like any treatment or therapy, they don't all work for all peopl...

Me again, This is groundbreaking stuff everyone - for it to do the greatest good for the greatest number of people, we need baby steps and that means research and discussion and debate. Pollyanna said: Why is there not a client advocate in the room? Blaze said: I agree completely Cece. It seems Yves...

Hi - long time volunteer with the MS Society here. We're doing our best - I promise!! The CCSVI working group is genuinely working towards achieving a better understanding about the current state of CCSVi from a medical, scientific and patient perspective. Information about the Working Group, who is...

Hi Codefellow, An ideal investigative panel would include say, five neurologists and five vascular specialists to both design and conduct the study and/or trial. the research being undertaken at the University of BC and University of Sask is multi-disciplinary: "At UBC, UBC Hospital and the Uni...

you ARE reading it correctly, but Dr. Z isn't throwing the baby out with the bathwater. Everyone is in this for the long haul, including the researchers. A scientific trial like this one invesitgated one specific thing : is there a difference in veins between HC and pwMS on MRV ? It didn't say that ...

Hi All - thanks to all for this discussion topic. Just to let you know: I am a member and volunteer in a local chapter. And yes, esta is correct: membership $ sent to a local chapter stay in the local chapter. Membership is important because if you are a member, you have a say. You can vote at the A...

Hi Sandra, I still read it as venoplasty happening AFTER the required study into bloodflow. Venoplasty is an option we would like to provide our patients. However, before making this step we are required to participate in a research study. At the moment we are trying to receive approval for a study ...

In reading the Facebook announcement by FCSS, it doesn't say anything about a treatment study. To me it looks pretty clear that they are trying to get IRB approval to do a "blood flow" study which I would guess is imaging/diagnostic only. Once the study has been completed, then they can go...

I agree with Scorpion

The CIHR meeting and recommendations are actually a very positive move forward in my opinion and here's why I think so: 1. for the CIHR to even call a meeting, to consult with an international group, to have a press conference on the outcome/recommendations all point to the fact that the CIHR, Healt...

Thank you Marc for your continued intelligent, probing and balanced take on things. Nothing in this world is black and white and its important that we all take a deep breath. I am a volunteer Board member with the MS Society (a local chapter). I chose the MS Society because it was more grass-roots t...

First - thank you Dr. Sclafani for being such a patient, generous and willing teacher and advocate. All of us who have been touched by MS will be forever in your debt. My close friend is ready/willing/able to have another balloon procedure done if he restenoses. I’m a worry wart (my ex had an angio—...

There might already be a lot to celebrate that date. That's when the MS Society will be announcing all of the CCSVI grants they will be giving out. This initial funding of research + the testimony of Zamboni and Simka could help be the momentum needed to get the government to commit $10million to CI...

Here's a quick primer on the different types of angiography, you can subsitute the word venogram/venography for angio (ANGIO = arteries, VENO = veins) Angiography uses one of three imaging technologies and, in some cases, a contrast material to produce pictures of major blood vessels throughout the ...