Search found 7 matches

by quarkrad
Fri May 14, 2010 8:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment in UK - Essential Health
Replies: 8
Views: 2121

Thank you all for your replies - good to see there are other people in the same situation. We are due to see our GP soon to discuss - I'm sure I've read some people have had liberation treatment done by Veno surgeons but others have been refused when MS is mentioned. Will let you know what happens.
by quarkrad
Fri May 14, 2010 4:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment in UK - Essential Health
Replies: 8
Views: 2121

Apologies for putting it in the title. I guess this is difficult because to my knowledge this organisation is the only one currently offering treatment in the UK. I was not sure about this post as this is international forum and my concerns re neuros is UK specific although I understand there is ske...
by quarkrad
Thu May 13, 2010 10:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment in UK - Essential Health
Replies: 8
Views: 2121

CCSVI Treatment in UK - Essential Health

Has any body experience of the neuro reaction to treatment? My wife is under a great neuro at Queen's Sq and we have yet to discuss (need to do it soon) but we do not know what the reaction will be. The medical establishment in he UK appears negative so perhaps it will not go down well - we would ra...
by quarkrad
Wed Apr 07, 2010 2:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - False Hope?
Replies: 8
Views: 2909

Thanks - I see/agree with your comments. Where is stem cells? It is an option/treatment for MS or was it something that never really happened in a practical sense.
by quarkrad
Wed Apr 07, 2010 12:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - False Hope?
Replies: 8
Views: 2909

CCSVI - False Hope?

I am new to MS (1 yr) and just starting the long journey (actually it is my wife who has MS). We are very excited with CCSVI and disappointed with the attitude by the majority of neuros in the UK. I think I can understand 'part' of their reluctance - i.e. is this yet another false hope? I have read ...
by quarkrad
Sat Apr 03, 2010 8:50 am
Forum: General Discussion
Topic: Holiday Insurance - Silly Question?
Replies: 3
Views: 2215

Spain. I have read the MS Insurance details on the MS Trust web site but when I ask myself if I really need it I'm not sure.
by quarkrad
Sat Apr 03, 2010 6:45 am
Forum: General Discussion
Topic: Holiday Insurance - Silly Question?
Replies: 3
Views: 2215

Holiday Insurance - Silly Question?

Getting my head round ms specific holiday insurance. My wife has RRMS - only diagnosed 12 months and has needed 3 steroid treatments to date. The major issue has been with her legs - she can walk unaided (but very slowly). Not sure what her limit is but we walk daily for about 15mins and shopping is...

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