Search found 3768 matches

by 1eye
Thu Feb 03, 2022 3:29 pm
Forum: General Discussion
Topic: MS
Replies: 28
Views: 5678

Re: MS

I was diagnosed in 1997-8, denied DMT because I was supposedly relapsing-remitting, then told I was secondary progressive, so it was 'too late' for DMTs, finally treated myself with biotin (later prescribed by a neurologist) which I have done for about ten years, never got my walking back (yet), and...
by 1eye
Mon Jan 24, 2022 12:36 pm
Forum: General Discussion
Topic: strong evidence about EBV involvement
Replies: 3
Views: 621

Re: strong evidence about EBV involvement

Warp Speed was not involved, but you might find this book interesting:

https://www.goodreads.com/en/book/show/ ... de-breaker
by 1eye
Sat Jan 22, 2022 6:02 pm
Forum: General Discussion
Topic: Split-Belt Training
Replies: 2
Views: 342

Re: Split-Belt Training

This split belt stuff looks great. I can only do a treadmill if I hold on with my hands, so I would be looking to try to go hands-free after the split-belt version. I wonder if I can get the rehab hospital to get hold of one of these.

Chris Sullivan
by 1eye
Sat Jan 22, 2022 10:37 am
Forum: General Discussion
Topic: Epstein-Barr & MS on the radio
Replies: 1
Views: 358

Re: Epstein-Barr & MS on the radio

Just heard it. Very significant was his saying they tested 10 million people who had never had EBV, and *none* of them got MS. So that's why they did the study. Where we have such large samples, we may learn a lot! How many people *don't* ever get a disease is a very good indication of probably a lo...
by 1eye
Sat Jan 22, 2022 9:21 am
Forum: General Discussion
Topic: Glymphatic system
Replies: 1
Views: 433

Re: Glymphatic system

I'm not sure it's so useful to rename CSF as glymph. Anyway I think it's important in MS. Get enough sleep. Sleep upright?
by 1eye
Sat Jan 22, 2022 8:59 am
Forum: General Discussion
Topic: Hello again
Replies: 9
Views: 1127

Re: Hello again

Another missed connection: Being upright again shows its teeth. If the brain cools better when we are upright does it not make sense that we should improve by sleeping with head elevated? We spend a third of our lives asleep! Maybe better to sleep upright! As far as sleep goes, I think an article in...
by 1eye
Sat Jan 22, 2022 7:50 am
Forum: General Discussion
Topic: Hello again
Replies: 9
Views: 1127

Re: Hello again

Hello hello hello, I am checking in. I have not had covid yet. Perhaps that is because I am almost always safe at home in my easy chair. I hope none of my ThisIsMS friends have died of it. We are at a critical juncture in human history, having lost more to this virus than many wars. Good luck to us....
by 1eye
Sat Jul 31, 2021 10:36 am
Forum: General Discussion
Topic: Hello again
Replies: 9
Views: 1127

Re: Hello again

Another thing that may come into it: and I have seen a paper detailing a drop-off above a certain temperature, is that the body naturally maintains internal temperature to the point that medicine is used to citing normal to three digits of accuracy. Could it be that in MS there is not only blockage ...
by 1eye
Mon Jul 26, 2021 11:50 am
Forum: General Discussion
Topic: Hello again
Replies: 9
Views: 1127

Re: Hello again

Hello again again: This is a bit of a discussion re: MS/myelin/blood temperature and pressure. One of the oldest tests for MS is a hot bath. I had a bad experience in about 2004, and have not had a hot bath since. Showers seem to be OK. My doctor friend sayz demyelinated nerves are very sensitive to...
by 1eye
Mon Jul 26, 2021 8:26 am
Forum: General Discussion
Topic: Hello again
Replies: 9
Views: 1127

Hello again

Hi. I'm still here. Still can't walk. Have fallen twice in the last year. No injury. MS as far as I can tell is not progressing any faster than old age. I am 67. Still taking 300 mg of Biotin with rice bran filler in a 00 capsule. Only other medications are Baclofen on occasion for spasticity, ramip...
by 1eye
Mon Aug 31, 2020 6:58 am
Forum: General Discussion
Topic: Voting
Replies: 0
Views: 492

Voting

by 1eye
Fri Apr 24, 2020 3:28 pm
Forum: General Discussion
Topic: Coronavirus (COVID-19) Research
Replies: 190
Views: 41664

Re: Coronavirus (COVID-19): What You Need To Know

I thought I should remind anybody out there who's worried about use of soap in the lungs because the lungs need surfactant, that incredible as it may seem, soap is a very effective surfactant, as anyone who has mixed distilled water with a small quantity of Dawn detergent in order to clean 78 RPM re...
by 1eye
Sun Apr 12, 2020 8:26 am
Forum: General Discussion
Topic: Coronavirus (COVID-19) Research
Replies: 190
Views: 41664

Re: Coronavirus (COVID-19): What You Need To Know

Someone I know made a two-layer mask: silk on the inside and cotton soaked in soapy water and dried, for the outside. This construction is meant to deactivate virus particles coming towards the wearer and prevent them going from the wearer when they sneeze or cough. I have had one older relative die...
by 1eye
Mon Apr 06, 2020 10:46 am
Forum: General Discussion
Topic: Coronavirus (COVID-19) Research
Replies: 190
Views: 41664

Re: Coronavirus (COVID-19): What You Need To Know

Fortunately some things don't have to be 'vetted'. They are quite obviously true or false, or just fun. Here is a link to my latest version of an op-ed... http://sullivanweb.me/mystuff/75%20years%20ago%20the%20US%20invaded%20Okinawa%202.pdf All youtube links have been removed. For entertainment: htt...
by 1eye
Mon Apr 06, 2020 8:56 am
Forum: General Discussion
Topic: Coronavirus (COVID-19) Research
Replies: 190
Views: 41664

Re: Coronavirus (COVID-19): What You Need To Know

quercetin and zinc: has this already been posted? https://www.youtube.com/watch?v=BIymfznD7YA Interesting, but don't forget this guy: https://www.nytimes.com/2020/03/24/us/chloroquine-poisoning-coronavirus.html don't self-medicate with fish-tank stuff: quinine water is not quercetin https://www.hind...

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