Search found 46 matches

by Ali888
Mon Feb 13, 2012 9:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nature of Things
Replies: 50
Views: 5149

Re: Nature of Things

Personally, the more Dr Murray and Dr. T. spoke, the worse they sounded. I think thay expose to the average viewer just what we are up against.
by Ali888
Fri Feb 10, 2012 5:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nature of Things
Replies: 50
Views: 5149

Re: Nature of Things

I was worried about watching that show. Had it all been about "poor MSers and their desperation to seek help no matter what the financial and perhaps medical cost might be" I would have been angry. That would have shot any chance of sleep last night as it was on just before bed. In the end, I had to...
by Ali888
Mon Sep 12, 2011 6:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians CAN claim for CCSVI expenses
Replies: 11
Views: 1405

Re: Canadians CAN claim for CCSVI expenses

Technically you are supposed to have a written statement from a doctor indicating that the procedure is not available in Canada. It does not have to state that the doctor feels that the procedure is required. My husband and I both travelled to Egypt in 2010 and claimed all expenses. Because the clai...
by Ali888
Fri Sep 09, 2011 9:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heavy legs
Replies: 14
Views: 6806

Re: Heavy legs

Although it is not my only problem, I certainly can relate to "heavy legs".
by Ali888
Sat Aug 20, 2011 9:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another Epstein Barr and MS related finding
Replies: 20
Views: 3326

We are not contagious. We can donate blood because they said, not one case of MS was ever found in a spouse of a PwMS. Unless, of course, they married a person known to have MS prior to their marriage . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ I was told by Canadian Blood Services that I can...
by Ali888
Sat Aug 20, 2011 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another Epstein Barr and MS related finding
Replies: 20
Views: 3326

deleted
by Ali888
Sat Jun 11, 2011 10:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BNAC funding status
Replies: 9
Views: 1774

I am suspicious of the BNAC research because of the way they have presented their results so far. They have slanted the wording of the results to the neurologists and to the media so that they prematurely state CCSVI is not the cause of MS. The results of their admittedly flawed methodolgy has been ...
by Ali888
Sat Jan 22, 2011 10:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Day after Procedure
Replies: 9
Views: 1591

I had the procedure on a Friday morning and flew on Sunday. If I were you, I would allow myself a few extra days. I would not have felt up to flying on the Saturday. I required a lot of medication during the procedure and was tired and "out of it" the next day.

Best of luck!
by Ali888
Fri Jan 21, 2011 9:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Travel insurance-Canadians
Replies: 9
Views: 2562

As an insurance broker in Winnipeg, I would highly recommend that you check the wordings of any travel insurance policy prior to purchase. Make sure that they do not exclude coverage when you specifically travel for a medical procedure. Travel insurance was never meant to cover complications from a ...
by Ali888
Tue Oct 05, 2010 5:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there such a thing as temporary restenosis???
Replies: 7
Views: 1750

Interesting to hear that perhaps I'm not alone.

I slept soundly last night and can tandem walk 10 steps!

I think I'll stop questionning how this is all possible and just enjoy!

Thanks for the info!
by Ali888
Sun Oct 03, 2010 3:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there such a thing as temporary restenosis???
Replies: 7
Views: 1750

Is there such a thing as temporary restenosis???

I had my CCSVI procedure on Jul 9/10. Over the course of the next 2 months, I had the following improvements: 1.) My foot was no longer purple. 2.) I could wiggle my toes. 3.) I had feeling in my feet. 4.) I could tandem walk up to 19 steps at a time (that was my record). 5.) I was no longer dizzy w...
by Ali888
Wed Sep 22, 2010 10:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: neuro problems after treatment?
Replies: 11
Views: 2534

I see 2 neurologists. Prior to going for the procedure, the one at the MS Clinic compared the treatment to bee stings. When I returned and he could measure the actual improvements, he said "But how long will it last?" Prior to the procedure, my 2nd neurologist said that he was too old to get his hea...
by Ali888
Mon Sep 20, 2010 5:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: garyak was liberated today
Replies: 44
Views: 7307

Congratulations! I hope you see huge improvement!
by Ali888
Wed Sep 15, 2010 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post Op instructions after Liberation Treatment
Replies: 4
Views: 1902

My husband and I were treated in Alexandria, Egypt in July. We headed to Cairo 3 days later to see some pyramids. Dr. Tariq said not to overdo it. "Heat is your enemy". It was over 40 degrees celcius. My husband did not fare well with the heat at all! I suggest that you not push yourself right after...
by Ali888
Mon Sep 13, 2010 6:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation procedure
Replies: 30
Views: 12367

As of July, 2010, the cost in Egypt with Dr. Tariq Sinan was $7000 US. This does not include transportaion or hotel.