Search found 237 matches

by Drury
Fri Jul 29, 2011 6:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: one year ago today: very brief note :-)
Replies: 25
Views: 3679

Thank you bluesky for such beautiful words.

Drury
by Drury
Tue Jul 19, 2011 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Hello Dr. Flanagan, Really helpful. Thankyou. Regarding the EMG hopefully her neuro's office will be able to accommodate on that but you never know. Its amazing that he has never suggested it. Will keep you posted. Update on my daughter's visit to chiro today. He said her whole body was out of align...
by Drury
Mon Jul 18, 2011 6:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117979

Thanks for the updates Cece. Loved the wine glass explanation and all your comparisons.

Hope you can 'go with the flow' for a lot longer now.



Drury
by Drury
Mon Jul 18, 2011 3:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23240

Dr. Sclafani, Bestadmom, Cheer, Cece, EVERYONE, all I can say is WOW!!!!

Wish I could have been there........

Drury
by Drury
Mon Jul 18, 2011 1:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Thank you Dr. Flanagan. I wish you could be cloned! Regarding the muscle testing if you only see the neuro twice a year how do you get regular muscle testing? Do you think if I print this out and give it to Dr. CIndrich he will be offended? Do you think seeing a physical therapist would benefit her ...
by Drury
Sun Jul 17, 2011 3:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Thank you for the recommendations Dr. Flanagan. Dr. Marion sounds great but not sure how easy it will be to get to him as Staten Island is a challenge. Will look into both. I am rather concerned when you say someone should be checking my daughter's muscles to see what is going on. How do they do tha...
by Drury
Mon Jul 11, 2011 6:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117979

Great news Cece!! Been thinking about you all day.

Speedy recovery.

Drury
by Drury
Mon Jul 11, 2011 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Blossom,

Hope you see some real improvements and as Happy Poet said will be thinking of you.

Drury
by Drury
Mon Jul 11, 2011 6:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Wow that was some party!!!!

Hope you are recovering well. Please take your time - you deserve some time out.

Drury
by Drury
Sun Jul 10, 2011 9:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Hello Dr. Flanagan, Apologies for not responding sooner as just bogged down these days but thank you for your response. My daughter is continuing her weekly treatment with Dr. Cindrich. I asked her if he uses blocks and she said he does but not every time and he checks her muscles but again not all ...
by Drury
Sun Jul 10, 2011 7:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117979

Cece,

First time on the site in ages and wow you are having a second procedure!!!!

Great Expectations!

Drury
by Drury
Tue Jun 21, 2011 7:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 528062

Hello Dr. Flanagan, Unfortunately I have not been around for some time and have been frantically trying to read as much as possibly to catch-up. I thought I left an update here a while ago on my daughters progress but it seems not to be here. I will try again as best I can remember. She has been see...
by Drury
Tue Jun 21, 2011 5:18 pm
Forum: General Discussion
Topic: Please help with Health Insurance questions
Replies: 6
Views: 1558

I think the health insurance situation is terrifying. My daughter has individual health insurance because she does not get cover from her workplace and it is a frightening $2000.00 a month!! It has gone up every year from $599.00 in Oct 2005 to the current premium and we dread the next premium incre...
by Drury
Mon May 16, 2011 6:41 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: New Data Alter Natalizumab Safety Considerations in MS
Replies: 1
Views: 1523

Thank you for that info Scorpion. I have not been on here for some time and my daughter has just had her 13th infusion and she was on Rebif prior to her treatment so its a worry.

Drury
by Drury
Mon May 02, 2011 7:56 pm
Forum: Drug Pipeline
Topic: Drugs for MS. Questions and concerns
Replies: 2
Views: 2539

RazzoSox21, So sorry to hear of your recent diagnosis and all that you are going through. I just wanted to reach out and say that my daughter went through similar agonizing pain and was hospitalized. They also had her on Neurontin, steroids, morphine, etc. and she continued on the neurontin and acyc...