This Is MS Multiple Sclerosis Knowledge & Support Community

i'm off to spin my wheels... just a note to close up this thread: i'm exiting this conversation to research the questions i collected above. i'm disappointed that the thread so quickly turned into only a 3-way conversation (as opposed to the many voices we had early on). i guess that comes naturally...

i got the info about the information sharing "rules" from a post by art a few pages up... read back in the thread. to get non-profit status, an organization has to write these things out (for review by the government, i assume).

good. willy, your last post was pretty helpful. i agree that compiling a list of questions to research, and then researching them, is a good step to take at this time. let's all of us (the people who are still paying attention to this post) try to cooperate in this information seeking. i'll start by...

willy, i'd never before considered the similarities between non-biologists and the fuhrer. we sure don't want a new vp of research who winds up killing 6 million people in concentration camps!!!!! let's be reasonable with our comparisons and metaphors. i think my crossword puzzle metaphor was a reas...

Too bad the new VP of Research doesn't campaign first (or does he), or that we won't be made privvy to the potential candidates on the NMSS list for consideration once Reingold leaves. (Or will we?) I think this is one of the changes that we PwMS should be asking the NMSS for. When they bring in a ...

here's a possibility i found on paul jones' site. Not a prime candidate, but amazing proof that someone with MS disability can be very active both as a scientist and an administrator: Richard Radtke: http://www.seaofdreams.org/radtke.html also, a leading NASA physicist named Natalie Mandzhavidze die...

Deb, I'd like to second the compliment to your post. Very interesting, very informative. I do agree to a certain extent that a little personal experience can tell you a lot about an administrator's openness. Thank you. For the record, to whatever extent I said that being MS-affected and having a pro...

Hi again. Art, thanks for the insight. I'm taking all of your suggestions into consideration. I do want to clarify one thing: by suggesting that this project include a bit of publicity about how much financial power the NMSS has over MS research, I was not proposing that the project should include a...

Everyone who's fed up with Stephen Rheingold, the current VP of Research for the NMSS (described as an "autocrat" a few times on this board due to his overwhelming control of current MS research and his unwavering faith that MS is an autoimmune disease)-- I have good news for you. He's ret...