Search found 31 matches

by Onthelake
Sat Sep 17, 2011 5:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 38161

Re: Montel's announcement

Bump....is there any word on this...I am so afraid I will miss the show...I can find nothing online....does anybody have inside information...thank you so much!
by Onthelake
Fri Apr 01, 2011 7:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SIR: Vascular MS Treatments Safe, but Efficacy Unclear
Replies: 4
Views: 1552

SIR: Vascular MS Treatments Safe, but Efficacy Unclear

http://www.medpagetoday.com/MeetingCoverage/SIR/25651 There is a video on the web page....here is the written part...Dr. Dake is quoted here... SIR: Vascular MS Treatments Safe, but Efficacy Unclear CHICAGO -- Angioplasty for obstructed veins leading away from the brain and spine appears safe for m...
by Onthelake
Sun Mar 27, 2011 6:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Alberta MS Society says "We are sorry"
Replies: 50
Views: 7129

I for one will never trust them. It is absolutely disgusting what they have not done for us over the past 2 years and is a breach of trust of the highest magnitude. I will watch with sadness as they eat their words over the next several months and years. Oh what might have been, the people who could...
by Onthelake
Sun Mar 27, 2011 4:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Alberta MS Society says "We are sorry"
Replies: 50
Views: 7129

The Alberta MS Society says "We are sorry"

The tide it may be changin'.... http://edmonton.ctv.ca/servlet/an/local/CTVNews/20110326/edm_ccsvi_110326/20110326/?hub=EdmontonHome "We are sorry" Updated: Sat Mar. 26 2011 13:59:15 Nahreman Issa, ctvedmonton.ca A member of the Alberta chapter of the MS Society of Canada is apologizing, saying the ...
by Onthelake
Thu Mar 03, 2011 4:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BNAC's research publication process
Replies: 10
Views: 2272

FYI - I sent a request for information to BNAC last week because I keep getting asked to make donations but am being provided with no info. Here is the reply I got.... Thank you for your interest in our research. BNAC's research will be published next month in a major peer-reviewed journal. Until th...
by Onthelake
Mon Sep 13, 2010 4:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thank you!!!!
Replies: 39
Views: 4058

I have been following your story and posts Trish since I started reading TIMS. I am so happy for you, both for the fact you are in love and also that your man is being treated....oh what a wonderful world! :D Can't wait to get an update...
by Onthelake
Sun Sep 12, 2010 2:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 286471

CCSVI TRACKING MS HISTORY Name: Onthelake Male/Female: F Age: 43 Date(s) & type of neurological diagnosis: 10/2002 possible RRMS dx, 07/2009 firm rrms dx Lesion locations, number: 2002 -Signal in callosal septal junction bilaterally, 2 of these lesions radiate out in a perpendicular fashion to the v...
by Onthelake
Tue Aug 31, 2010 6:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638129

Buffalo Results

Hi Dr. Sclafani, I am going crazy not knowing what is going on in Buffalo, re the safety trials and then the efficacy trials that were to happen soon after them...is there anyway you can find out what is happening..there was a terrible article in the Canadian press today stating that there is still ...
by Onthelake
Mon Aug 30, 2010 11:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sir: "Your Blood Flow IS NOT NORMAL"!
Replies: 15
Views: 3934

Just some further info...esp re the discrimination concept...I had a brain wave this weekend, I thought why not ask my neuro to reverse my diagnosis of MS since there is no 100 percent true test to prove I have it, then I could be treated for CCSVI in Ontario right? Well not true. I called Dr. MacDo...
by Onthelake
Thu Aug 19, 2010 3:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Costa Rica
Replies: 5
Views: 2935

Hi everyone, not sure what happened to this thread, it appears most of the talk on Costa Rica is on the Facebook thread. Lots of info there. Anyway had to tell you TIMSers I heard about the Clinica Hospital Biblica in San Hose Costa Rica's CCSVI programme, that can be accessed through Passport Medic...
by Onthelake
Wed Aug 18, 2010 2:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Low Blood pressure issues post angioplasty.....anyone else?
Replies: 23
Views: 10237

Hi pinksapphire, I also have perfect BP, scheduled for procedure on November 1. Will let you know if I have any problems...hope you find a solution and feel better.
by Onthelake
Fri Jul 30, 2010 3:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS decision disgusts patient's husband
Replies: 5
Views: 1826

I believe it was RVH that stopped Dr. MacDonald from treating Barb...not OHIP$
by Onthelake
Thu Jul 29, 2010 12:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Canada: We need to Challenge the Status Quo
Replies: 5
Views: 1646

I am also in Canada and can relate to both your comments. The class action is underway in the form of a charter challenge. The lawyer is confident but costly. If you truly want to help go to angioplastyforall.com , read the plan and make a donation. We are the group of Canadians who are taking this ...
by Onthelake
Mon Jul 26, 2010 5:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Was just liberated - have a few postop questions
Replies: 8
Views: 1766

I think you should call the Dr that looked after you and give a full report, I would rather you be safe than sorry. I am hopefully heading to Albany in a few months...best of luck. :)
by Onthelake
Sun Jul 25, 2010 4:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BEST WISHES, DR. SCLAFANI
Replies: 14
Views: 3177

A million thanks Dr. Sclafani to you and all the others who take the time to attend, to work on our behalf and to OPEN their minds to new ideas. Wish I could be there, hope there will be a press conference and a video perhaps posted..if possible. We are all behind you. Best of luck.