Search found 12 matches

by lynn45
Sun Oct 17, 2004 2:12 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

rebif formulation

I am also wondering about the new higher ph, sharper needle formula. I have heard about it but have not been able to find out when it might be available. I will check with the pharmacy and see. I just got a new months supply and looked all through the patient insert stuff but found no mention of new...
by lynn45
Sat Jul 31, 2004 7:55 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

good report

It was good to hear that you got a good report on your mri. I just had one, the first since 6 months of rebif, and it's the fist one I have had in a while that showed no new lesions or activity. I am like you....maybe it's the rebif.????...I guess it has encouraged me to stay on it though I really h...
by lynn45
Sun Jul 25, 2004 3:16 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

Dawn, Sorry to hear about your reaction.. I know what you mean about the itching..I have sensitive skin anyway and am allergic to lanolin so I have to avoid most everything. My neuro took me off the rebif for one week, then had me start back at 1/4, then 1/2 doses. I have not had hives again. She di...
by lynn45
Fri Jul 23, 2004 3:29 pm
Forum: General Discussion
Topic: Officially diagnosed
Replies: 5
Views: 2919

Karen, I was diagnosed two years ago and while I was glad to get answers, the answers I got were not what I wanted to hear, so I pretty much ignored it at first. I came to grips with the reality of it when I started on the meds. I take rebif. That was my rude awakening. Do you have a good neurololgi...
by lynn45
Fri Jul 23, 2004 3:14 pm
Forum: Rebif
Topic: I would like to hear how people are doing on Rebif.
Replies: 28
Views: 15180

mri

Just had my first mri since starting rebif 6 months ago, and had 0 new lesions. Last two had showed more each time. While I can't be sure if the rebif is why, I am encouraged that maybe it is helping. I don't know if I would stay on it if it had been otherwise. It is easy to get discouraged with the...
by lynn45
Fri Jul 23, 2004 3:09 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

injection sites

Hello I have also gotten contradictory information on injection sites. The nurse who taught me to inject said above the waist was fine. The nurse with MSLifelines ( sponsored by the drug company) who calls periodically said no. I need to find out more. Maybe from some of you who inject there with no...
by lynn45
Wed Jul 21, 2004 12:20 pm
Forum: General Discussion
Topic: Relapse? or what?
Replies: 6
Views: 3655

hi xenova I got an answer today on this problem. To make a long story shorter, I have been diagnosed with shingles. I am starting a round of prednisone and antiviral medicine. Hopefully it was diagnosed in time for the antiviral to lessen the symptoms. I am relieved that it is not a relapse but it i...
by lynn45
Tue Jul 20, 2004 7:30 pm
Forum: General Discussion
Topic: Relapse? or what?
Replies: 6
Views: 3655

Hello Alicia, Thanks for the reply...I was trying to think of how to describe the numbness..Novacaine is how it feels. When your symptoms went away was it a gradual thing? I hope you are doing well now. My initial symptoms were a really bad pain in the neck and 1/2 of my face having numbness. They t...
by lynn45
Tue Jul 20, 2004 3:39 pm
Forum: General Discussion
Topic: Relapse? or what?
Replies: 6
Views: 3655

Relapse? or what?

I was diagnosed RRMS 18 months ago , (am a 51 yr old grammy) and have not had a serious relapse in that time. Mainly numbness, facial pain, etc. I am very fortunate in that regard. (I was diagnosed from an mri that showed the lesions and also from a spinal tap.) However I am now in day two of what m...
by lynn45
Thu Jul 01, 2004 11:30 am
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

Dawnsbrain, I am not sure on why the lower dose, unless she is being cautious until my blood work gets done. I was off for one week and am having my first relapse since before I started rebif...I have really bad neck pain and leg heaviness and tingling. Also, thanks mscaregiver for the injection inf...
by lynn45
Wed Jun 30, 2004 6:17 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

rebif ...hives

I spoke with my neurologist about the itching and hives, she said to take one week off then start back at half doses, then a week of 3/4 then back to full dose, also did blood work to check liver....still have some itching but hives have subsided...I am currently on a week of half dose (22mcg) Dr th...
by lynn45
Fri Jun 25, 2004 10:49 am
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

rebif---

Has anyone experienced hives or itching related to rebif? I have been on rebif for 6 months and have been having bouts of itching and a rash. I have been using 44mcg but have been told to go off rebif for one week and start back at a half dose. Just wondered if anyone else had had that experience.

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