Search found 35 matches

by Flashover81
Sun Feb 22, 2015 5:17 pm
Forum: General Discussion
Topic: 5 days of IV Steroids: Still no improvement
Replies: 12
Views: 1659

Re: 5 days of IV Steroids: Still no improvement

Hi, Can you provide us with a bit more colour about his diagnosis, what the people treating him say, what tests he has had and what ones are unusual? As he is young can you detail what his history has been? Regards Hi, Scott. My son was 14 when he had Ataxia and balance problems. I am a Firefighter...
by Flashover81
Sat Feb 21, 2015 11:07 am
Forum: General Discussion
Topic: 5 days of IV Steroids: Still no improvement
Replies: 12
Views: 1659

Re: 5 days of IV Steroids: Still no improvement

Hi.......My son has been taking B-12 shots for approximately 2 months prior also. Haven't had a b-12 test.

He has been taking protandim, d-3 5,000 iu a day and the b-12 shot 5mg once a week.
by Flashover81
Sat Feb 21, 2015 8:37 am
Forum: General Discussion
Topic: 5 days of IV Steroids: Still no improvement
Replies: 12
Views: 1659

5 days of IV Steroids: Still no improvement

Hi, I have a 18 almost 19 year old son diagnosed with MS at the age of 14. He has not had any issues until a week ago Sunday. Went to the Hospital on Sunday and started the IV Solumedrol. He presented with numbness of the left arm and leg and balance issues "Ataxia". He received 1,000mcg for the 5 d...
by Flashover81
Sun Dec 07, 2014 5:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New study: 83% of 552 pwMS have CCSVI
Replies: 12
Views: 2105

Re: New study: 83% of 552 pwMS have CCSVI

I agree, lets not be closed minded anymore. The majority of Humans seem tolerant with all the change going on in the world except the Neurological Community. Hopefully that is changing as well "I have HOPE". Maybe the Neurological closed mindless will change when the Old Guard goes out and hopefully...
by Flashover81
Mon Apr 08, 2013 7:27 am
Forum: Under 25 with MS
Topic: 17 with ms
Replies: 8
Views: 8018

Re: 17 with ms

Hi, Sorry about your diagnosis. I have a 17 year old son that has ms. He had his first episode at the age of 14, Nystagmus and balance issues. Was in the hospital for 6 days on solumedrol. The Nuero told me that it might be ADEM (ACUTE DISSEMINATED ENCEPHALOMEYELITIS) or MS. I went home and hit the ...
by Flashover81
Sat Jan 26, 2013 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1701461

Re: DrSclafani answers some questions

Hi Dr. S. I am the father of a 16 almost 17 year old son who presented with ataxia and nystagmus at age 14 almost 15. Diagnosed initially with ADEM, had MRI at 6 months looked good leisions starting to go away "leisions were prdominately Periventricular". Second MRI showed a new leision so he was ta...
by Flashover81
Sun Oct 28, 2012 6:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1701461

Re: DrSclafani answers some questions

Still here, read it every day. Learning every day also.
by Flashover81
Sat Mar 24, 2012 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Third CCSVI treatment tomorrow
Replies: 29
Views: 2665

Re: Third CCSVI treatment tomorrow

Great news. Glad your results were positive, and I also hope it lasts.
by Flashover81
Sat Mar 10, 2012 3:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and children..
Replies: 11
Views: 2225

Re: CCSVI and children..

The Radiology facility in Ft. Myers didn't send the cd of the MRI just the written report (very upset) to Tampa. So don't know like you Rhonda if they are old or new. He was positive about CCSVI but wouldn't elobarate. We talked about the DMD's and I told him we would like to try a strict diet and s...
by Flashover81
Sat Mar 10, 2012 3:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Third CCSVI treatment tomorrow
Replies: 29
Views: 2665

Re: Third CCSVI treatment tomorrow

Wish you a speedy recovery. It would be interesting to know if the leision is new or not, and if it responds to the procedure. Best of luck. Jimmy.
by Flashover81
Tue Mar 06, 2012 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and children..
Replies: 11
Views: 2225

Re: CCSVI and children..

Just got my sons MRI report. He had 2 previous MRI's that were stable in the last year and a half. The current MRI shows 2 new leisions Predominately right frontal,not actively enhancing and not hyperacute. Have a appt. with Nuero at U.S.F. in Tampa on Thursday. He has not had any relapses that I ha...
by Flashover81
Thu Mar 01, 2012 7:20 pm
Forum: General Discussion
Topic: Any firefighters or former firefighters on here?
Replies: 11
Views: 3246

Re: Any firefighters or former firefighters on here?

I'm a firefighter, I dont have MS but have a 15 almost 16 year old son that was diagnosed with MS. If I can help dont hesitate to ask. Or if you want to just talk. Take care. Jimmy.
by Flashover81
Sun Dec 25, 2011 12:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Merry Christmas and a HAPPY NEW YEAR to all of us!
Replies: 12
Views: 1467

Re: Merry Christmas

Merry Christmas CeCe!!!!! And everybody on this site. Have a wonderful and safe Holiday.

Jimmy B.
by Flashover81
Wed Apr 13, 2011 8:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any updates from Dr. Weinstock Guttman's trial?
Replies: 5
Views: 2049

Thank's CeCe. I thought their were more children involved in the study. Had a appt. in March with our Nuero in Tampa at USF (Very involved with CCSVI). My son's recent MRI showed no new enhancing leisions and old leisions were barely noticable. He has had no issues since his first attack (very happy...