This Is MS Multiple Sclerosis Knowledge & Support Community

DeeDee I worked for a paint mfg co which mfg onsite paint for marine vessels and offshore platforms. I became quite ill while working there and eventually just left employment with them. I was exposed to benzene and many other chemicals during my employment there. The last day I was there one of the...

Hi Lace - About a year ago, during what I know know was an MS attack but at the time did not, I went for a massage in the hope that it would relax me and help alleviate some of the weird sensations I was having. The massage actually made me feel worse. In retrospect, I think it was because the lesi...

I AM currently doing deep tissue massage through my PTherapist along with other PT. I find I benefit from the deep tissue massage. I started the initial trmt before starting on any of the medications used in the trmt of MS. I also had been getting regular massages prior to being dxd with MS. Whether...

sunshine I am sorry to hear you are experiencing the nasties of this disease and I hope you find some relief very soon. I am on Rebif for three months now and was told the same as you were about the time frame in which in takes the med to start hopefully doing its thing. Although I had a good MRI ea...

I autoinject and do not remove the bubble. It is there for a reason so I leave it alone. I self injected Friday night and didn't see much of a diff in the reaction at the site so I do not feel as though I am missing out on something by not manually injecting.

Xenova
Just wanted to tell another Louisianian hello. Did I butcher the word? LOL
Not often I run in to another person from the state I live in.

I rec'd a good MRI report earlier last week.....0 new lesions and no lesion activity!!!!

Is it the Rebif, who knows really but, I guess I am stuck using it for now since it was a good report. It really is a pain using it b/c of the random site reactions and just the pain of having to inject meds.

oreo...so glad to hear you are having a better go at it with the Rebif. I am an autoinjector all the way but, you know, so many have said the manual hurts less I may give this a go. The site reactions I've been having lately are just way too much to have to deal with and then have to inject again an...

Oh yeah, I've had one or two panic attacks since starting Rebif. I've only had one in my life and it was prior to a serious surgery I was facing and that was prolly 10 yrs ago. I called my hub during it b/c I just would not get out of the vehicle to do what I had gone to do. LOL, then I started frea...

I have also experienced the splitting nails! I've never had the strongest of nails but, the way they have been since starting the rebif is something new. I hear you about the sites not being as bad as the itchies from the bites!!! LOL I will stick it out on the Rebif as well unless the doc tells me ...

Thanks lynn. I am so glad to hear about the good results on your MRI. As I mentioned I shoot the tube in the morning...at 7am so hopefully I can just go back to sleep once I get there. I will let you know if I find anything that works on the inj site also. If you ever need to just talk pm me okay. I...

lynn
I have also lost weight since starting the Rebif. I have a very unhealthy look to me that I feel is caused by this toxin used for trtmt. My hair has also thinned and I had an overly thick head of hair that I once paid to have thinned out.

I quit using the arm injection sites as they hurt too damn much no matter what they say about technique using these sites. Just holding my arm up a few days afterwards hurts. I used some cortisone cream on my inj sites that were itching and it seems I had an allegic reaction to it. We are talking we...

Hi Lynn
Welcome to the board.

Hello Hilda and Welcome! I am sorry to hear of your daughter's dx with MS but, glad she has found a trtmt that is working for her. I hope she will be back in full swing in her life soon. You may want to look up another member CCMom as she has a son that was dx'd and is also on the same med I believe...