Search found 44 matches

by Trine
Fri Sep 03, 2010 6:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had surgery with Dr. Arata--California???
Replies: 84
Views: 21692

Music wrote:
The cost was $8,000.00 - stents would be included BUT he has only used stents once.

The 8K was the total cost for both diagnosis and treatment? Or is it just for the venoplasty and testing is extra?

So how do you feel? Did you benefit from treatment?


:)
by Trine
Wed Sep 01, 2010 11:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 13722

Time to update :D Now, it's about 2 months checkpoint since procedure in Ameds, Poland. Let's say that first month was unstable period, with fantastic moments to no-improvement-periods.. but since then (this last month) it has been absolutely wonderful and stable. At this moment you could say hones...
by Trine
Thu Aug 19, 2010 7:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 4 days after liberation update: I DO have improvements!
Replies: 21
Views: 3803

I know you were disappointed in your other thread, but this is great to hear and I'm happy for you.





:D :D :D :D :D :D :D :D :D
by Trine
Wed Aug 18, 2010 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
Views: 119499

Not sure if you've seen these ones.

Before


1 Month After





:)
by Trine
Sat Aug 14, 2010 4:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 163405

The more success stories we have out there, the more open people will be to the procedure. I can tell you that the Albany team was great!!! Everyone- including the nurses- are aware of the CCSVI procedure and are just as excited as we are when we see improvements. Trust me, guys- the wait is worth ...
by Trine
Wed Aug 11, 2010 8:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FlashHack is Liberated
Replies: 161
Views: 29021

GREAT NEWS, Flashback! Love reading your detailed updates.




:D
by Trine
Sun Aug 08, 2010 12:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hotel-Wheelchair accessible- New York/Siskin
Replies: 23
Views: 4907

Re: Hotel-Wheelchair accessible- New York/Siskin

I am planning on getting the angioplasty in New York via Dr. Siskin's Clinic. Now I can only afford to do it via the clinic not hospital. I a am in a wheelchair 24-7. What is the best hotel, closest to his clinic? (711 troy-schenectady rd latham new york-I have that right?) How far is it from the a...
by Trine
Fri Aug 06, 2010 5:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Passport Medical
Replies: 17
Views: 3945

Re: queue jumping

Euromedic does not allow queue jumping, but AMEDs does. They have set aside a certain # of appointments exclusively for Passport Medical. I would prefer to wait for Euromedic, but does anyone have any real idea what the wait time is? Have they, in fact, stopped accepting new patients? I emaile Euro...
by Trine
Wed Aug 04, 2010 6:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Details of my procedure from July 27th... Bulgaria
Replies: 5
Views: 2086

Re: Details of my procedure from July 27th... Bulgaria

Thanks for sharing your experience. It would be tough for me to travel that far and still not have all insufficient veins fixed, but I think that was a very wise decision. At least you know that option is there for you.

Wishing you continued improvements.
by Trine
Mon Aug 02, 2010 7:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Westmount Square Medical Imaging Montreal Now!
Replies: 109
Views: 22187

Re: testing not available anymore

As you can see from Westmount square's website, they are no longer providing testing. http://www.radiologymontreal.com/ So, can anyone tell me if the only canadian option for all the testing, using the correct protocols, remains False Creek? Last I heard, it is a 5-6 month waiting list (not too bad...
by Trine
Sat Jul 31, 2010 12:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A GREAT IR needs our help!
Replies: 15
Views: 3266

I'm sure you can find major names who are doing it openly even--the Vascular Group in Albany (Dr. Mehta), Dr. Siskin and his group, the Arizona group... even if you don't get other names... Those first two are doing the procedure at their clinics rather than the hospital, specifically because their...
by Trine
Fri Jul 30, 2010 12:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Income Tax Credit
Replies: 9
Views: 2121

Hi You did not hear this from me. Get a local service club with a charitable donation number to do a "fund raiser" for you, maybe make a donation yourself ?!! get tax receipt. Welcome to the world of fundraising. Scotland Can you give examples of some local service clubs? I'm in BC. Short answer - ...
by Trine
Fri Jul 30, 2010 9:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation in Albany?
Replies: 14
Views: 3236

Interesting prices because I got a call on Monday and the cost was not that high. I was asked if I was interested in coming in and have the venogram ($600). I would like a trial with a IRB before I sign up. They have not gotten appproval yet for a trial. I think it is impartitive that results are s...
by Trine
Thu Jul 29, 2010 12:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 8522

Did you have any improvement initially or was it downhill from the start? Have you had a check up of your veins to see if maybe you've re-stenosed? Maybe they didn't check something and missed your problem?

I'm so sorry to hear your situation and hope you get some real answers soon.
by Trine
Thu Jul 29, 2010 10:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation in Albany?
Replies: 14
Views: 3236

3K angiogram + 2K angiioplasty (if necessary) + 2K per stent (if necessary).