Search found 37 matches

by FastBenz
Fri Jan 14, 2011 1:10 pm
Forum: General Discussion
Topic: Looking for Neuro in Orlando
Replies: 0
Views: 991

Looking for Neuro in Orlando

I just moved to Longwood, FL. Does anyone know a good Neurologist close to that area or in Orlando?
by FastBenz
Wed Nov 24, 2010 4:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI today in Tampa
Replies: 10
Views: 2506

Seems like my hands are getting better. There is not much numbness left other than my fingers. I really hadn't tested out heat tolerance. But I do notice when I go out while it is sunny I "feel" it less. Makes me wonder if there was a better stent out there how would I feel. One side is 75% and othe...
by FastBenz
Sun Nov 21, 2010 7:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI today in Tampa
Replies: 10
Views: 2506

They entered through my right leg.
Had first few nights of sleeping through the whole night. Unbelievable! I hope this keeps getting better! I have to say I am feeling pretty damn good!

I love the CLK's Nunzio. I have the E55.
by FastBenz
Fri Nov 19, 2010 4:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI today in Tampa
Replies: 10
Views: 2506

My Azygos was checked and had very little issues so they had not ballooned it.. 30 days of Plavix is my treatment. Then baby aspirin after that. I am not sure of the balloon size and pressures. I am supposed to do a follow up in 4 weeks. They want a Doppler done as well but I can have that done clos...
by FastBenz
Fri Nov 19, 2010 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI today in Tampa
Replies: 10
Views: 2506

CCSVI today in Tampa

Went in today with Dr Arslan.
Found both jugulars 90% blocked. Did angio. one vein is now 30%, other is now 75%. Decided to not do a stent and see how I did with much blockage opened up. Cog fog, gone. Vision better. hands now warmer and less numb.
I hope this continues. :D
by FastBenz
Thu Nov 11, 2010 5:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are there less risks with a Stent in the Azygos vein
Replies: 25
Views: 5237

My Dr., Dr Arlslan in Tampa stated he only does the azygos due to the location and not being as much movement. He said doing the jugular, your neck moves too much which bends the metal of the stent, which could eventually break. Just think of when you bend a paperclip back and forth enough the metal...
by FastBenz
Mon Oct 25, 2010 9:25 am
Forum: Regimens
Topic: Why do some docs use stents, not others in ccvsi?
Replies: 4
Views: 2982

My Dr wasn't fond of stents due to the amount of movement in your neck they will see. When you bend metal back and forth enough it will eventually break. That is the best way I can relate to it and understand it. He is just waiting for some newer more flexible technology behind stents.
by FastBenz
Tue Oct 19, 2010 11:45 am
Forum: General Discussion
Topic: lyrica
Replies: 4
Views: 1617

I tried it and it messed me up bad. My Neuro said I would feel odd for a couple of weeks until I got used to it. I couldn't make it past the 1st week. Messed me up more than it helped at all. It felt like I was spun around in an office chair really fast about 20 times. I don't even know how I made i...
by FastBenz
Tue Oct 19, 2010 5:27 am
Forum: General Discussion
Topic: Growth Hormone
Replies: 15
Views: 6813

Been on it for a month now. I feel pretty good mood wise still. The best since diagnosed. I just "feel" better overall in spite of my usual MS issues which has not changed.
by FastBenz
Sun Oct 17, 2010 3:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Arslan in Tampa.
Replies: 6
Views: 3408

Have an appointment for surgery Nov 19th. Met him Friday and was very nice. Explained the whole procedure to me and what to expect.
by FastBenz
Sun Oct 17, 2010 8:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Have an appointment in Tampa Nov 19!
Replies: 0
Views: 1475

Have an appointment in Tampa Nov 19!

Met with Dr Arlslan Friday in Tampa, My MRV showed my left jugular almost closed. Surgery is on Nov 19th and on insurance! forgot to get a copy of the video :(
by FastBenz
Fri Oct 08, 2010 12:51 pm
Forum: Betaseron
Topic: Necrosis?
Replies: 2
Views: 5473

Necrosis?

I've been on Betaseron for over a year now with no issues till recently. About 4 months ago I injected into my muscle when I was really tired. I had a lump for a month and thought it would go away. Then it started really hurting. I was prescribed antibiotics and came to an open wound with dead skin ...
by FastBenz
Wed Oct 06, 2010 11:15 am
Forum: General Discussion
Topic: IGFBP-1 deficiency and MS
Replies: 21
Views: 4379

Still on HGH and Test. Energy and mood still been the best its been since diagnosed.
by FastBenz
Wed Sep 15, 2010 12:51 pm
Forum: General Discussion
Topic: IGFBP-1 deficiency and MS
Replies: 21
Views: 4379

I will talk with my neuro. But I feel I have MUCH more energy and I'm less depressed and moody. I have the stress of divorce,losing my house, and mom having colon cancer going on. Sticking with it for now. Did your insurance cover it? What are taking and how much? 2iu a day mon-fri, 1cc testosteron...
by FastBenz
Wed Sep 15, 2010 12:38 pm
Forum: General Discussion
Topic: IGFBP-1 deficiency and MS
Replies: 21
Views: 4379

I have a neuro appt tomorrow. I honestly feel the best since being diagnosed energy and mood wise after the 2nd week of both. He is going to love me as well when i tell him I got tested for CCSVI as well and on the list for surgery locally in FL. :) Wasn't a fan at all when I mentioned CCSVI testing...

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