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Back from check up in Sophia... Had procedure done beginning of June. Come to find out that my right side remained fine but my left side where they did suggest stents ended up closing again.. it was to be suspected and I am fine with the decision not to stent.. right now I'm in really good shape not...

At this point, I am not ready for stents. Dr. Mehta says he keeps in contact with companies that make stents and devices and he feels that something will be designed in the near future more for the veins. That's hopeful. I am not sure I will go somewhere for the 2nd time around or wait a bit. I do ...

Kathy, I had it done in June (In Bulgaria) restenosed returned 3 weeks later had it done again. I know I have restenosed. I am going to try for a third time in Albany. I wonder if the long flight has anything to do with restenosing. I am going by car to Albany. It is only a 5 hour drive from where ...

[quote="ven"]hello donna i went and when he did me the scan he said a open and perfect and i yold him am still in pain.... so he gave me tjis new herbal pills will keep u update if u want xx gdluck[/quote Hi Ven, Yes, please keep me posted. Has this new herbal pill helped you yet with the ...

colapesce wrote:A piece from a Canadian paper on Tokuda/CCSVI
http://www.thestarphoenix.com/health/Bu ... story.html

Thank you for this as it was a great positive read...

Hi Colapesce and Devine(Donna) Me and Livabird(Jayne) will be arriving in Sofia on the 6th of October until the 14th, would be great to meet up I believe we are staying at the hospital on the 6th thru the 10th and hotel Greenville on the 11, 12 and 13... Will have to exchange details if you like No...

Hi Colapesce, I did the exact same thing as you.. I got operated end of May and then the day after coming back I was back at work. The first month was great however the meds made me feel very dizzy and even felt like fainting.. believing that it gave me low blood pressure. No stents were put in even...

tomorrow of to sofia the 2ndd tims hope this time i be good finger cross Hi Ven, Good luck and keep us posted as I will be going next month (2nd time) and still have to come up with a decision of stenting.... so scared to stent if anything goes bad and for blood clots (don't want to put my life in ...

Dear all, How have people paid for the procedure? In a very early blog post, someone said they paid "cash"... have people used credit cards? is it cash only? all comments appreciated. Thank you... Hi SamSam, I paid with my credit card as I wanted to be protected for fraud. They will bill ...

I'm so happy to find you all blogging about this here! This is my first post to the forum - I'm scheduled for the procedure at the beginning of October. I see I need to be insured for the procedure. What insurance packages have people bought? I understand insurance for the procedure is expensive an...

Hi Dania, Good luck with getting in touch with your dr's as I tried getting an appointment when I came back from bulgaria as per dizzy spells and low blood pressure causing this... but my neuro's secretary never tried calling back and I had left 4 message and also sent an e-mail with no success... ...

Hi Dania, Good luck with getting in touch with your dr's as I tried getting an appointment when I came back from bulgaria as per dizzy spells and low blood pressure causing this... but my neuro's secretary never tried calling back and I had left 4 message and also sent an e-mail with no success... o...

I am far too weak to make the long flight from Montreal to Bulgaria.They left the stent in and but removed the clots.[/quote] Hi Dania, I`m really sad to hear the bad news.. I am also from Montreal, i`m sure you have but did you try to get any doctors here to help you. or are they trying to rub you ...

Dania, did you talk to the dr and have they offered you anything else as your next step.. did they take out your stent at that point... Wishing you good luck and getting better ASAP....!

Hi Dania as per your remark.. you mentioned that you "had my first procedure done on June 23. Had immediate improvements that disappeared after 1 week. Had second procedure (cost 3500 euros) July 14. The 1 stent had blood clots in it and that vein had stenosesd past the stent. The other 2 veins...