This Is MS Multiple Sclerosis Knowledge & Support Community

OK All, The much heralded video post CCSVI surgery is now posted on YouTube: http://www.youtube.com/watch?v=IAfU6NCuYCo But don't hold your breath - improvements are only marginal - as I've said before, the repair to my plumbing systems is well past the sell-date of my spent electrical circuits, so ...

No need for the Soapbox, CCSVIhusband. Dr Kosteki and his team DO check the vein without a twin - they even give you the venogram images and video clips which show (to the educated eye) that the azygous vein is not blocked. I am confident that I have been privileged to have the best of treatment in ...

Hi Patrice, Hope you've caught up with the time zone changes - takes some time doesn't it! Sadly, my news isn't so good at the moment (which is why I haven't updated my blog at the moment). My mobility is actually less than before 'the Fix', such that I can't manage any of the planned yoga exercises...

My thoughts exactly, Patrice. Hopefully the others will update this blog. I have some of the email addresses that Google Bart had forwarded me and may organise those when I get a chance and scan for updates from the 'later' folks. Meanwhile best wishes to you and Chris - I'm off to do my morning rou...

It's Independence Day and it's time for me to check out of here and get back to Blighty. The exercise regimen is in force, and consists of 10 bridges, 5 dog balances (that lifting one arm and the opposite leg whilst on all fours), and from the yoga manual 3 sun salutations, 2 warrior poses, and a st...

It’s 2am, a little more than 24 hours since the procedure completed, and I’m sorry to report that I’m not one of the miracle cures. One never hoped for anything more than arrested development of the disease, of course, but you know how hope springs eternal. So I’m looking for small improvements. In ...

Hi Dave. Hope you and Jeff had a good trip back. With all the cancellations here due to all the cardiac submissions (hot weather and all) the five scheduled procedures were dropped to two - myself and Patrice. So paradoxically, a Brit and an American were the only two on Canada Day! I felt undeniabl...

Had a chat with Sue from Cornwall, Ontario, and she has convinced me that my EDSS (which is self-assessed) should be 6.0, so there you go - I'm up half a point. Signature will shortly be changed!

Its the last day before the procedure (I'm not referring to it as liberation out of respect to the Jews who were truly liberated around here at the end of WW2). Started off with the Lymes disease blood test (optional, and extra cost of approx $150, but when in Rome, and all that). This one's the tes...

Great news! I had both my MRI and my Doppler scan, and met Dr Kosteki today. What a nice man he is. Indication is that right jugular is clear, but vein on left side is restricting flow. Which is odd because the right-side vein affects the left side of the body (my weak side) and the left-side vein a...

I forgot to add to yesterday's post that I (almost) hit one brick wall during my Neuro exam, when I failed to show my medical notes. My UK Neuro has never offerred me any medical notes, and despite many requests, has never performed an MRI to confirm MS. Now I'm not saying that I haven't got MS, of ...

My agenda has been jumbled up a bit - started off with neuro exam today. Refreshing examination and analysis of my MS history. Quite unlike my annual check-up with my UK Neuro under the 'risk sharing scheme' where the only thing the neuro is interested in is the injection site rashes from Copaxone (...

Well, I got through the traumatic journey to Poland. I took a flight out of Stansted with RyanAir (cost was a big factor for me!), and to their credit the wheelchair assistance was very good. I didn't feel too 'parked' for most of the time, and they were there at both ends of the journey to assist. ...

I am in an optimistic mood today, and so according to the notion that a picture is worth a thousand words, I have created the following video on Youtube to show the extent of my current abilities, and hope to impress with a resoundingly improved performance in about one month's time following the CC...

Hello Fire Hazard - I'm there the week before you - return flight scheduled on 4th July - may get a chance to share a beer, perhaps? My itinery is on my 'Brit going to Poland' link: http://www.thisisms.com/ftopict-12008.html Cheers, and all the best for your procedure. PS I'm in Hampshire - where ar...