This Is MS Multiple Sclerosis Knowledge & Support Community

Boisegal, i had the same exact experience and outcome as your husband. Crazy... I too have thought vein by-pass may be my only viable option.

I too was wondering where she had disappeared to. I hope she is ok...

Liberation, I knew something had gone wrong after my symptoms started creeping back. Once I had my second venogram I knew for sure. I am not completely certain of the issues that led to their re-stenosis. I know they were angio'd again, some in Egypt and some went to the U.S, another had a stent put...

Welcome Munchkin!! You are in good company

My apologies for getting off topic with my posting...

Thank-you all for your support and encouraging words. I feel a sense of assurance that everything will work out after reading your comments. I don't want it to seem like I am a Debbie Downer, for the most part I am a positive person. There are just periods of time when I spiral out of control...wher...

I agree Griff. I made the best decision that I could at that time. I was also in a complete state of panic, fear, and anxiety. That did not help the situation.

Thanks for responding Marc, Cece and Dr. C Sorry Marc, I was under the impression that Dr. Sclafini could not enter your vein. Thanks for clarifying. I am at a loss for words really. There is a part of me that believes I caused this... by going to Egypt and jumping the gun. If I would have waited wo...

Thank-you Dr. Cumming.

Based on the images you posted, it looks as though the condition of my vein actually worsened in the months after my first procedure. This makes my stomach sink.

I hope there is another avenue we can take. Here's hoping...

I have no idea. I did not receive any written documentation about my procedure from Egypt. I requested it a few times but never got it. There is a big difference between our medical system and the Egyptian one. The written documentation and follow through is not there. I would really like to know if...

The injectables I took for 10 days. If I had thrombosis or a clot would I still have felt better after the procedure? I'm just spinning here...not sure if it is in my favour to be picking apart the decision to go. I was and am desperate, not sure if I have my head on straight.

At the time, I did not even know if I had CCSVI and so after researching and talking to other Canadians I felt he was my best shot. I was able to get in quickly, and with work I had the month of August off. I am not sure why it is blocked. There could be a number of reasons...I think in due time we ...

I had my procedure in Aug 2010. I was on four anti-coag at the same time one of which was an injection. His regimen with me was very aggressive. I don't believe the cause of my re-stenosis was due to a lack of anti-coag. What do you think? I e-mailed Dr. Sinan a few times with no response. I underst...

Thornyrose, I am not certain but it is definitely happening. I know Dr. Sclafini has attempted to do a venogram/plasty on the Wheelchair Kamikaze. I am not certain of all the details but from what I gathered he was not able to get through all of his veins. I know Mark posts on TIMS, hopefully he wil...

I am not certain why it ended up blocked. I know the first time Dr. Sinan had a heck of a time getting in there. Where are you from? There are some great docs in the U.S (in addition to Dr. Sclafini)

Mavis, how do I find 'mrhodes' on TIMS? I have tried to search her/him but have been unsuccessful. Do you know if she is on Facebook?