This Is MS Multiple Sclerosis Knowledge & Support Community

So here is the promised status report, but first the facts: • In day +5 my white cell count dropped to 0.0035, indicating my immune system was practically eradicated • Day +6 was 0.03 • Day +7 was 4.5 • Day +8 was 35 • And today, day +9 was 130 Professor Dr. Ho, the amazing gentleman who runs the s...

I am RRMS but had MS for over 25 years. I was stable for many years no progression. But this last relapse what a slap of reality and I feel this is a better option vs the meds out there. I have 2 little girls that need me. Is HSCT also good for SPMS? (MS since 23 years, still walking with a cane, b...

I tried Fampyra for two weeks with no clear reaktion in walking improvement. (MS since 23 years, EDSS 6,5) I made a break for 3 days (no significant difference, perhaps right leg worse) Two years ago I made a test with 4-AP, 4x5mg/day. Now I start again with a 4 week test on Fampyra. Does anyone hav...

leez, how is your experience with Ampyra after a longer period now? I made some trials with 4x5 mg 4-AP 3 days long with no effects. Than I stopped because of problems in my CAP-protocol. (Antibiotics) Today I did a restart with 1x10 mg 4-AP and noticed after 1 hour tingling in my body /legs. I had ...

Hi khehran, you took which dose of 4-AP (Fampridine)? AMPYRA was better than 4-AP? Did you feel immediate responce? Some weeks ago I started a 4 days trial with 3x5 mg 4-AP without results. Today I restart with 10 mg 4-AP at once with tingling feelings in my face after 1 hour, no improvement in walk...

Hi,
I will start tomorrow with up to 4x5mg/day 4-AP.
Hope it works for me.
Ampyra will be available in Germany in March 2011.

Hi, I´m in contact with Jim on this board. I start 4-AP this week with up to 4x5 mg/day. Never heard before about 4-AP-3-MeOH, but it sounds interesting. My question is, if 4-AP-3MeOH is better than 4-AP, WHY it`s not in AMPYRA (or is it ??) By the way... - In Germany you get 4-AP wthout prescriptio...

Thanks Tony!
..Doc WW is a very special person, I know..

I will start with 5 mg and will go up to 4x5 mg (AMPYRA is 2x10 mg)

Hello, I´m on CAP-Wheldon since 4 weeks and want to improve walking with AMPYRA (4-Amino-Pyridine) Do you see any problems along with Doxy/Roxi ? About FAMPRIDINE: AMPYRA is a potassium channel blocker approved as a treatment to improve walking in patients with multiple sclerosis (MS). This was demo...

Hello, I`m on Wheldon protocol since 6 weeks, but have not made a IgG or IgE of Cpn before, because I read that there is no sure metod of detection. So why doing it? For MS, it is interesting to detect Cpn not only in blood, you must detect it in liquour as well. Is this right, or is it sufficient t...

Hi, after 14 days on Doxy ( 7 days 2x50 mg, 7 days 2x100 mg) I progress in getting weaker and weaker. The problems startet with numbness in back and leg, 10 days before Doxy when I started 2x600 mg NAC. In my 20 years MS-carreer /therefrom 8 yeras SPMS) its really dramatic now. OK, for serveral days...

Hi Robbie I´m here since a few days and I will start CAP as soon as I get the OK from my doc.
All the best for you !!!

UWE

Hello,
I´m looking for a docter in (southern) Germany who will give me an assist in CAP.
I´m too scary to do it on my own...

Hope you can give me some hints.

Kind regards
UWE