Search found 51 matches

by Guider
Wed Nov 17, 2010 4:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 228070

Hi everyone,

Just wanted you to know that my son received his call today, Nov. 17th for an appt. @ Albany on Dec. 14th., 2010. We first contacted the clinic on June 1st. Feeling very excited.

Guider.
by Guider
Wed Nov 17, 2010 4:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 73510

To all:

Should have added we are Canadian without insurance.

Guilder
by Guider
Wed Nov 17, 2010 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 73510

Hi everyone, I've had quite some trouble for a while trying to log in to this site again but today I was determined to do so because I have news!! :) My son received his appointment today! We first called the clinic on June 1st. and received the return call within a day or 2, then the e-mail asking ...
by Guider
Fri Oct 29, 2010 7:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 73510

Hi folks, have been checking in from time to time to see how things are going. Congratulations to those who have their appt. I saw a post listing the prices for the treatment. Does anyone know if the cost of the stents have gone up from the previous stated $ 2000.00?? Our initial call was June 1st. ...
by Guider
Tue Aug 24, 2010 2:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 228070

Hi to everyone, My son finally had to email Albany requesting information re scheduling and his place on the list. This is the email he received in return today: "from Rachelle Stepnowski on behalf of CCSVI IR: Hi Justin, Yes we have you registered on our waiting list as of June 1st. Our list c...
by Guider
Sat Aug 21, 2010 9:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 228070

Hi everyone, I came on line to see if there were any updates re the scheduling and find that I am very disappointed to hear that it is such a long wait time still. Our initial call to them was June 2nd. so that means we may have a very long wait yet. Disappointed, frustrated, ..... :( :? :cry: Guider
by Guider
Sun Aug 15, 2010 7:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 23514

Sky, thank you for posting and please come back and do so again some time.

Hope I appreciate your post. So true.

Guider
by Guider
Wed Aug 11, 2010 1:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 228070

BTW, Chris, congratulations are in order. Sorry that I missed that.

Guider
by Guider
Wed Aug 11, 2010 1:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 228070

Thank you Chris.

Guider
by Guider
Wed Aug 11, 2010 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not Johnson?
Replies: 15
Views: 5388

Well spoken Eric.

Guider
by Guider
Sun Aug 08, 2010 10:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not Johnson?
Replies: 15
Views: 5388

Johnson,

Thank you for the reply. Continue to do the things you want to do, but, please don't forget us! We appreciate any time you give to us and this forum.

Best wishes,
Guider
by Guider
Sun Aug 08, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 23514

Hi Bluesky,

Glad to hear your report and wishing you continued improvement. Say Hi to your kids from me please.

Continue to take care.

Guider :)
by Guider
Fri Aug 06, 2010 5:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 23514

Bluesky, I agree with Ozarkcanoer. I too do not know what to say except that I truly appreciate you posting what you feel and allowing US to share it with you. I understand how you felt not being able to share with your sister. I was the same with my mom. Even now whenever I do some craft etc. my in...
by Guider
Tue Aug 03, 2010 4:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Just two weeks!
Replies: 26
Views: 6668

Congratulations :!: to BooBear, ozarkcanoer, and newlywed4ever. Will keep you in prayer.

Guider
by Guider
Tue Aug 03, 2010 3:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not Johnson?
Replies: 15
Views: 5388

Ricci,

Thank you for posting that. I too was wondering how he was doing.

Guider

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