Search found 73 matches

by javabean
Wed Mar 02, 2011 2:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

Thanks for your responses. I say it didn't work b/c none of my symptoms have been alleviated. I had some luck first time around but that's it. I heard it takes time but to have nothing at this point. I think it all points at nothing happening. I just have to come to terms with it...
Thanks again
by javabean
Tue Mar 01, 2011 1:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

So, no improvements. This sucks. Just thought I would update that this procedure has not worked for me despite three tries. It's good to know about this though, god forbid, my daughter gets MS. At least she might have a chance to avoid this hell.
by javabean
Fri Feb 25, 2011 10:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

did you get a stent put in? if so, where? did that mean the problem was not in your valves?

no stents. i guess he thinks they can be detrimental because they cause the vein to react with some type of tissue regrowth which makes the vein even narrower
by javabean
Fri Feb 25, 2011 10:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

Javabean, are you on any medications since this third procedure? Maybe something to keep from having a triple re-stenosis again? I pray this third time does it. Were you told to rest after the procedure or any instructions? Please keep us updated. It is a learning experience for all of us. Also did ...
by javabean
Fri Feb 25, 2011 9:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

"After two procedures, your jugulars and your azygous were all blocked again? Did your doctor offer any explanation? This wasn't clotting, was it? Just elastic recoil or missed blockages from the other procedures. You'd already been to Albany and to PI, these are experienced docs, I just wonder why ...
by javabean
Fri Feb 25, 2011 7:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

Last time I update, I promose. So I had the procedure today and both jugulars blocked as well as the azygous. He ballooned to 16mm, less than the doc in California. Took a walk around the block which was pretty much the same...Hopefully, like the first time, I willl have improvements in a few days.
by javabean
Thu Feb 24, 2011 4:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

So, I go for my third and hopefully last procedure tomorrow. What is the difference between this and the previous two? Well, the doctorsaid he will use a stent but he cautioned that don't alwayd hold the veins open. He seems to think he can keep the veins open by holding them open longer. I guess we...
by javabean
Mon Feb 21, 2011 6:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

No stents in either of the previous two procedures.
by javabean
Mon Feb 21, 2011 5:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

Just wanted to say thanks for the responses and to also that I went for the ultrasound today and Dr. Makris found a blockage on the right side. I plan to go for the procedure this Friday. Once again I'm faced with the unertainty of this but also feel like what the hell. I have nothing more to lose...
by javabean
Thu Feb 10, 2011 10:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: third procedure?
Replies: 46
Views: 7801

third procedure?

I'm curious if anyone has had a third procedure. I am having someoene look at my scans from the previous two procedures and am therefore thinking about a third. I had good success almost immediately after the first, which went away, and is why I had the second. I just feel like those benefits I saw ...
by javabean
Wed Feb 09, 2011 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Makris' 1st CCSVI Procedure-28 Dec 2010
Replies: 86
Views: 19465

Donnchadh,
Did you have any improvements after each of the two procedures? Was it different for you after the third as far as improvemrnts? How are you now?
by javabean
Mon Feb 07, 2011 9:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: iliac vein?
Replies: 1
Views: 1415

iliac vein?

I think this topic has been discussed before, but I am wondering if anyone knows the status of treating the iliac vein? It seems that going in on the left was so that the iliac could be seen. The two procedures I have had, both went in on the right. Any thoughts?
by javabean
Mon Feb 07, 2011 8:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: any IRs NOT focusing on the valves?
Replies: 19
Views: 4406

Almost Clever,
No improvements as far as I can tell. I did have improvements after the first procedure though, which is weird, in my opinion.
by javabean
Sun Feb 06, 2011 9:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: any IRs NOT focusing on the valves?
Replies: 19
Views: 4406

Cece, This is my basic understanding...I had ont procedure done in Albany that was just ballooning (14mm). I had some improvements, then declined and suspected restenosis. I then went to Pacific Interventionalists where they ballooned (22mm) and cleared out the valves in my jugular veins. So if I un...
by javabean
Sun Jan 23, 2011 7:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: results?
Replies: 0
Views: 1472

results?

I imagine people are getting tired of my frantic posts but I can't help it. Sorry... What I would like opinions about is when people start seeing results when it isn't right off the table. This is my second go around with the procedure -- first in Albany and then in CA where they used a larger ballo...

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