Search found 6 matches

by lynnkay4
Mon Aug 02, 2004 3:15 pm
Forum: General Discussion
Topic: Anyone off Copaxone notice a difference in how they feel?
Replies: 8
Views: 4708

Hi Cathy, you asked why I went off my copaxone, I didn't realize that I hadn't mentioned it in my post. Sorry about that. My neuro decided that he didn't think it was helping me that much after 15 months, because I had some on going symptoms, and get this my MRI was better, well I thought that is wh...
by lynnkay4
Sat Jul 17, 2004 12:48 pm
Forum: General Discussion
Topic: Anyone off Copaxone notice a difference in how they feel?
Replies: 8
Views: 4708

Anyone off Copaxone notice a difference in how they feel?

Has anyone been taken off their ABCR drugs and notice a difference in how they feel. I was taken off my Copaxone about 2 weeks ago and I think I feel stiffer than I did.. I know Copaxone is suppose to slow down progression not help with symptoms I've had for months. Just wondered if anyone else has ...
by lynnkay4
Thu Jul 15, 2004 5:23 am
Forum: General Discussion
Topic: CSF Protein
Replies: 6
Views: 3998

Cathy I know exactly what you mean about having a doctor for each health problem. I do the same thing.. I have an allergist, gastro, neuro ophthalmologist, and the best primary doctor .. I wish he could treat me for everything. The doctors are suspecting Myasthenia Gravis also and he is right on top...
by lynnkay4
Tue Jul 13, 2004 2:54 pm
Forum: General Discussion
Topic: CSF Protein
Replies: 6
Views: 3998

Cathy thank you so much for writing back, you are so right about the doctors.. It was hard to start over and over with new Neuro's and then I got the one I have now and he has been great and the only one who was willing to help me, but he seems to be riding the fence so to speak about my dx... one v...
by lynnkay4
Mon Jul 12, 2004 5:25 pm
Forum: General Discussion
Topic: CSF Protein
Replies: 6
Views: 3998

CSF Protein

Does anyone know what is considered a high level of csf protein from a lumbar puncture.. do all labs use a different scale or do doctors just determine what they consider to be high enough to consider for diagnosis. I was dx due to symptoms, history, MRI's ,but pretty non specific lesions in the gra...
by lynnkay4
Sun Jul 11, 2004 5:36 pm
Forum: Introductions
Topic: Hi, new to this board.
Replies: 3
Views: 2997

Hi, new to this board.

I'm 57 yrs. old was dx April 2003, traced back to when I was in my twenties. Had problems off and on and then they really got bad around 1999. I've had double vision when looking to the left for 2 yrs now, vertigo, balance problems, spasticity, cognative problems. fatigue, etc,etc... Stopped working...

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