Search found 7 matches

by sanfran
Sun Jul 17, 2011 7:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 11884

Hi Kathleen.... Missed you a lot on FB and after meeting you at the Vancouver rally, I was very much puzzled at your exit. Don't know a thing about it, but I'm so very pleased you dropped in to say hello and supply a brief explanation for your recent absence. Wishing you nothing but happiness and ho...
by sanfran
Sun Jul 18, 2010 2:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 305170

Just got an email that I have a hospitalization date for Dec 15th in Sofia. That's really great news, but I also am on the waiting list for NY. Just wondering if NY, by some miracle, gives me an earlier date, can I cancel the Bulgaria date? I have 5 days to respond to Bulgaria. I'd love to go there ...
by sanfran
Fri Jul 16, 2010 6:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: From the bulgarian forum
Replies: 2
Views: 2022

I wonder what the results are for people with an EDSS score of 5? I'm hoping for any good results no matter how small.
by sanfran
Fri Jul 16, 2010 6:27 pm
Forum: Introductions
Topic: Anyone from BC, Canada?
Replies: 24
Views: 5768

Hi BC friends... I'm from the Fraser Valley. I haven't had CCSVI treatment yet, but I'm on a couple of waiting lists, so hopefully that will change. I go the the UBC MS clinic once a year.
by sanfran
Thu Jul 08, 2010 4:02 pm
Forum: General Discussion
Topic: Short Survey for School Project
Replies: 16
Views: 4648

1.yes
2.no
3.RRMS
4.yes
5.no - not religious at all
by sanfran
Mon Jul 05, 2010 3:15 pm
Forum: MS in the Golden Years
Topic: what is happening
Replies: 8
Views: 14234

I'll definitely post any info as it happens. I saw my GP today and he agreed to do follow-up care after I get home. I'm VERY pleased about that. I still don't have a date, but I am a patient person, sort of :wink: I'm just fed up with noticing little things get worse all the time and I'd love to see...
by sanfran
Sat Jul 03, 2010 3:01 pm
Forum: MS in the Golden Years
Topic: what is happening
Replies: 8
Views: 14234

I just found this thread and I'm so happy to know that there is a place for the over 60's. I am 65 and have had MS for 40 years. I can still walk but get very tired after a few minutes. I miss those wonderful retirement years we've been promised! I have my name on the wait list for CCSVI treatment i...

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