Search found 64 matches

by LauraV
Tue Jul 10, 2012 6:31 am
Forum: Chiropractic Treatment
Topic: What Chiropractic care is best for MS/CCSVI
Replies: 12
Views: 7310

Re: What Chiropractic care is best for MS/CCSVI

After the first adjustment I felt like I had been beaten up, but I wasn't concerned because my body was clearly responding; but afterwards I never felt or saw anything - no improvement in any MS symptom. I was so disappointed. I was wondering if I needed a different type of upper cervical chiropract...
by LauraV
Mon Jul 02, 2012 10:12 am
Forum: Chiropractic Treatment
Topic: What Chiropractic care is best for MS/CCSVI
Replies: 12
Views: 7310

Re: What Chiropractic care is best for MS/CCSVI

I saw an Atlas Orthoganal doctor in northern NJ once/week for a couple of months. His x-rays showed improved alignment but I noticed nothing. Saw a NUCCA doctor in White Plains, NY for2-3x/week for about 5 months with the same results----improved images but no improvement in function.
by LauraV
Mon Jul 02, 2012 9:54 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: cytoxan therapy
Replies: 47
Views: 27495

Re: cytoxan therapy

Is there much difference between MS cytoxan therapy and the cytoxan therapy they give for breast cancer? I took cytoxan with adriamycin (and steroids) for every two weeks for eight weeks as the first part of my chemo for breast cancer. I noticed my MS symptoms worsening. Saw a neuro recently and was...
by LauraV
Fri Jun 01, 2012 10:02 am
Forum: Medical Devices
Topic: Folding Mobility Scooters
Replies: 1
Views: 2774

Folding Mobility Scooters

Although I am lucky enough to still be able to walk with a walker or a cane, I find that my activities are becoming more limited. I need a scooter to walk longer distances. I want to get a folding scooter that I could put in my car. The Luggie is the one I hear about most but it's expensive. The Lex...
by LauraV
Tue Jul 19, 2011 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 38206

Friday 7/15 was the Patient Education Day of the CCSVI symposium. Montel entered after we started and sat quietly in the back of the room. I noticed him during Dr. Sclafani's presentation in the morning. I'm not sure how long he stayed but I didn't notice him after lunch.
by LauraV
Tue Jul 19, 2011 8:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 540901

upright doc, Before looking into CCSVI and the liberaton procedure, I went to an upper cervical chiropractor in White NY. I went three times a week for about four months, then I went down to two for another month and then I just stopped. 5 months and I noticed absolutely no improvements at all in my...
by LauraV
Tue Jul 19, 2011 7:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STROKE DISABILITY EERILY SIMILAR TO MS SYMPTOMS
Replies: 5
Views: 2983

MegansMom,
What a great explanation of the brain's workings....comparing hypoxia in MS to anoxia in a stroke. I can see some of my friends' eyes glaze over when I launch into my more complicated explanation of CCSVI. This could help those without MS to understand it and CCSVI better. Thanks!
Laura
by LauraV
Sat Jul 16, 2011 5:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23892

It was a great day in every way. The presentations were interesting and enjoyable. Dr. Sclafani's presentations on the CCSVI procedure and use of IVUS were excellent as were those by his ultrasound tech, Dara and Dr. Ponec's nurse. The presentations on stents and anticoagulants, while technically "d...
by LauraV
Sat Jul 09, 2011 9:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 120723

Wishing you all the best in Brooklyn Monday, Cece. I'll just miss you there. My ultrasound appt at Brooklyn AAC is Thursday. I will be at the symposium Friday, though. I look forward to meeting you then.
Laura :)
by LauraV
Thu Jun 30, 2011 3:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23892

CCSVI symposium

Do we have to present our RSVPs to get into the Patients' Day?
Laura
by LauraV
Mon Jun 20, 2011 5:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23892

Kiki,
Love the idea of the name tags. I'm fortunate that I live close by so I'll just drive in Friday. Hope to meet you and our other TIMS members then.
Laura
by LauraV
Wed Jun 15, 2011 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639274

CCSVI symposium

Dr. Sclafani, My question today is a practical one. I'm feeling so much better since my procedure with you. My stamina is good. I feel stronger, BUT I don't know how well I'll hold up at an all-day conference in a Manhattan hotel. I'm wondering if I should take a wheel chair. What kind of space are ...
by LauraV
Wed May 18, 2011 3:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639274

APOLOGY

I'm so sorry about the repeated posts. It's pouring here. My computer kept giving me this message that I needed to debug it. I kept trying to send it, as you can see.

So sorry folks!
Laura :oops:
by LauraV
Wed May 18, 2011 2:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639274

STENTING WITH DR SCLAFANI???? YES!

Dr. Sclafani, I'm here to ask you a few questions and to tell everyone how you stented my completely occluded left jugular vein. With the left jugular closed again (as you predicted) you had difficulty re-opening my left IJV, even after that impressive rendezvous procedure on day 1. So I was a littl...
by LauraV
Wed May 18, 2011 12:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639274

STENTING WITH DR SCLAFANI???? YES!

Dr. Sclafani, I'm here to tell you and everyone that it CAN be done and it WAS done beautifully 5/16, by Dr. Sclafani, himself. Stent(s) from Dr. Sclafani? I was a little unnerved. Fortunately, I had a week to process the whole idea when you told me Sat, 5/7. When I arrived Monday morning I was read...