This Is MS Multiple Sclerosis Knowledge & Support Community

I really don't think it's Americans vs Canadians, but rather insured vs uninsured. Those with insurance are treated at Albany Medical Center hospital, and those without (including and maybe mostly - Canadians) are treated at the clinic to keep their out of pocket expenses lower. My procedure was don...

Wow - thank you Greg, for the great description. I'm going to have the procedure by Dr. Siskin at the hospital next Wednesday and I needed to hear a good outcome for someone with ppms. I've been trying to keep my expectations down so that I might only bounce UP, but I'm not sure it's working! Gettin...

Finally, a date for the procedure and sorry but I've been too busy to watch the forum and give my time log. Mornings here in Alaska have been pretty frosty and I've been trying to finish up a bunch of projects around the house & barn so that my horses and I will be ready for freeze-up. And I don...

MS HOPE - you stated so eloquently what so many of us feel - I hope you don't mind if I just tag on my - - ditto! Dr. Sclafani, I don't know that we've ever had such an advocate before. Sorry - no question, just appreciation from another pwMS feeling like a chlorophyll starved plant that finally see...

I was rather disappointed to hear how slowly the list for Dr. S in Albany seems to be moving. They have me down for having called on June 15 and was told this morning that I'd probably get a call around the first of the year to schedule an appointment!

Thanks everyone, for posting your timelines. It helps fill the wait time.

I'd heard somewhere that Dr. Siskin and the other two drs at that clinic do 90 to 100 patients a month. How did you find out where you were on the list? All I seem to be able to do is wait, wait, wait! My callback was 6/22, 7 weeks ago, but I have no idea how many people are on the list. I'm so worr...

What a gift you are. Let the brilliant minds, creative work and blood flow!

I keep watching for information on treatment of PPMS but I haven't seen reasons or speculations about WHY they often see less positive outcomes. Are the poor results associated with problems that are less treatable, or if a pwPP has jugular & azygous fixes do they STILL have little change? As so...

newlywed4ever - I hope you & your daughter have great results and will be the last in your family that have to go through this. Just think if we could have had our blood flow checked and fixed early on and had never had to learn about MS! Does anyone know about "the list" and how quick...

Hi Dr. Sclafani - I am still feeling shock & awe that after 30 years of losing ground, drawing on hope, denial, and fantasy, I now feel empowered! I’ve never before seen such intellectual curiosity, professional passion, and human compassion directed at something that could help ME. Thank you so...

We never find anyone with symptoms exactly like ours, do we? I was dx with "probable MS" in 1988, then went through 12 years of being declared "not typical" which led to investigation of physical spinal problems, vit b12, blood tests, etc. In 2000 I went to Mayo in Rochester, MN ...

I’m with you burg. Dr. Sclafani, I haven’t felt like I had anything to contribute to this discussion – except my heartfelt thanks and support – but I’ve been waiting for you to decide how you’ll proceed and watching for when and where I can contribute. In all my years of dealing with this disease I’...

Dr. Sclafani, Count me in with those who appreciate all you’ve taught and done for us, and count me in as contributing to your imaging study too, as soon as I have it done. As I’ve crammed for my ultimate exam in my study of CCSVI, I’ve noted the importance of correct scanning and interpretation, an...