Search found 50 matches

by naychergirl
Mon May 21, 2012 4:26 am
Forum: Drug Pipeline
Topic: have u heard of these med's ( NEW TO THE SITE )
Replies: 2
Views: 2646

Re: have u heard of these med's ( NEW TO THE SITE )

Ihave been taking Gilenya for over a year. Is it any better than doing the shots? I don't think it's really any better, but a least you don't have to do the shots. Prior to the Gilenya, a started out on Copaxone, which did absolutly nothing for me, so I switched to REbif, which worked great and you ...
by naychergirl
Sun May 20, 2012 7:16 am
Forum: Stem Cells
Topic: Has anyone been to Panama City in Panama for Stem Cell ?
Replies: 9
Views: 3807

Has anyone been to Panama City in Panama for Stem Cell ?

I have filled out an application for treatment in Panama, but I'd like to find out of any of you have been there, and how it went for you.
by naychergirl
Mon Dec 20, 2010 4:51 am
Forum: Drug Pipeline
Topic: gilenia / fingolimod / FTY720
Replies: 17
Views: 13158

I am in a study down here in Florida. I began taking Fingolimod last week. So far, so good. No side effects. I was on Rebif, and I was treated for CCSVI, which helped ease some of my symptoms. I was doing well with the Rebif, but personally, I'd rather not have to take a shot! :wink:
by naychergirl
Sat Oct 30, 2010 5:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

Re: Albany

The person that called me was not a medical one; I will be getting a call from both a nurse and Dr. Englander, who is doing the procedure. I already have a list ofquestions given to me by my neuro-he's trying to protect me-and I will post as soon as I have answers. They are calling my insurance; I ...
by naychergirl
Thu Oct 28, 2010 10:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

Hi all! The actual proceedure was a breeze and painless for me, so don't worry about any type of pain.I had the proceedure done on 10/8 at Albany Medical Center/Community Care. I had a blocked right juggular and azygos. Some of the great changes were immediate, and my walking ability has been gradua...
by naychergirl
Fri Oct 22, 2010 5:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 286209

CCSVI TRACKING 10/08/2010 MS HISTORY Name naychergirl Male/Female: F Age: 48 Date(s) & type of neurological diagnosis: RRMS 8/2007 Lesion locations (most affected side, if known), number: right side 3 lesions. MS treatments: Copaxon 2008-2010, Rebif currently, baclofen, gabapentin, dextroamphetamine...
by naychergirl
Thu Oct 07, 2010 5:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

And it's my turn tomorrow, Oct. 8th! I am so excited. My husband and I fly out today.
by naychergirl
Sat Sep 25, 2010 6:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

Hi TFAU, we called around May 20th and my partner has an appointment for Oct. 7th. We were only given about 6 weeks notice, so it could happen quick when it does. I don't know if it was a cancellation though. doesn't hurt to check, you could email them also. Hi Shueywho! I am going to have the proc...
by naychergirl
Sat Sep 25, 2010 6:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Community Care Albany?
Replies: 16
Views: 3819

Me too! many of them. And I hope everyone who posts on this web site is blessed with the opportunity to experience and see miracles. Especially physical healing miracles through being liberated.
by naychergirl
Fri Sep 24, 2010 7:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

Hey Bobbi and Tfal! I think I contacted them late May early June. I emailed Dr. Siskin a few weeks ago to find out if he could give me a "round about date". He wrote me back saying he was booked until April 2011. But a few days later, I get a call with a date with another doctor in his practice. So,...
by naychergirl
Fri Sep 24, 2010 7:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Community Care Albany?
Replies: 16
Views: 3819

Trish317 wrote:
naychergirl wrote:Hi All!
I am scheduled for Oct.8th and my insurance is covering it! Yay!
Sending you prayers and good thoughts for wonderful results!
Thanks Trish. This whole process, and how I came to find out about it has been miracle of God. And prayers are what we all need!
by naychergirl
Fri Sep 24, 2010 7:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Community Care Albany?
Replies: 16
Views: 3819

HFogerty wrote:naychergirl: May I ask, are you scheduled for treatment or testing?
I have already been tested. The doctor down here said my left jugular had some degree of blockage when I sat up. I am going for treatment.
by naychergirl
Thu Sep 23, 2010 1:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50018

I recieved my date of Oct. 8th and myinsurance is covering it! Who would have thought? Maybe the insurance companies are getting hip to the possible benefits!
by naychergirl
Thu Sep 23, 2010 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Community Care Albany?
Replies: 16
Views: 3819

Hi All!
I am scheduled for Oct.8th and my insurance is covering it! Yay!
by naychergirl
Mon Sep 13, 2010 12:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 162521

I have an appointment in Albany for Oct. 8th. It can't get here fast enough! I continue to pray for all of you, the doctors and staff, and for the medical community to turn the light on! I hope that all of us are in the 1/3 of success stories! :D