Search found 17 matches

by Brian
Tue Dec 06, 2005 6:42 am
Forum: General Discussion
Topic: Steroids
Replies: 2
Views: 2272

Hi - I take it about every 3 months. I have it just like you (3 day course) with a taper of Predizone. It helps me regain my sense of balance, helps with my stiffness and I generally feel better. I hope it treats you well.
by Brian
Fri Oct 21, 2005 4:36 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 27679

Hi - I have been on Novantrone since March this year. I have only exp. fatigue (it is hard to tell it is because of the chemo or just MS) and once in awhile after the treatment slight nausea. Generally, I am doing much better. I believe it is stabilizing my MS.
by Brian
Thu Aug 25, 2005 5:08 am
Forum: Rebif
Topic: Combination of Rebif and Novantrone
Replies: 0
Views: 2389

Combination of Rebif and Novantrone

Hello, I just started on Rebif yesterday. I am in my two years of getting Novantrone (IV) every three months. When I was dxed in 2/2002, I started on Betaseron. Did that for about year. It did not seem to have any effect. Then I started Copaxone last year. Had terrible site reactions and generally d...
by Brian
Fri Jul 22, 2005 11:29 am
Forum: Copaxone
Topic: Copaxone and Fatigue?
Replies: 17
Views: 21867

That is interesting regarding the fatigue. I have always had fatigue, so I am not sure if any of the drugs I am on are contributing. I still have about 2 years left of my Novantrone treatment, but I figured it was the chemo that was contibuting to my fatigue level. I never gave Copaxone a thought ab...
by Brian
Thu Jul 21, 2005 8:48 am
Forum: Copaxone
Topic: Copaxone and steroids
Replies: 6
Views: 6271

Hi - I am not having a good reaction with Copxone either. My site injections are swollen and itch for days. I am in combo therapy (I am also on Novantrone) and I do pulse steriods (IV solumedrol 3 days and a taper of predizone) every 4 months or so. I still get the best results with the steriod. I w...
by Brian
Mon Jun 20, 2005 6:47 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 27679

Well I just read that Cylert can cause liver malfunction, so that is out. I also read that mercury poisioning may be a factor. I am not sure about that, but here is another ms website that might be of use. It is: www.direct-ms.org/ there seems to be alot of diet information. Let me know your thought...
by Brian
Wed Jun 15, 2005 8:39 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 27679

I wonder why we both slept so well after the infirst injection. My second injection was 6/3, but so far my fatigue seems to be OK. I am not exercising as much, so that could be a factor. Other than that, I feel fine and happy. I eat like a champ, so I am happy about that. I still wonder if Provigil ...
by Brian
Thu May 26, 2005 3:46 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 27679

Hi, Fatique has always been a symptom. I took Provigil for a week. I liked it, but I read here (news on thisisms.com) that it really does not do anything for msers. I just took it in the am when I got up and it seem to wake me up. With Betaseron, I really did not have any flu-like symptoms or even s...
by Brian
Wed May 25, 2005 11:03 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 27679

Novantrone/Copaxone Combo

I have been on a combo therapy of Navtrone since March of this year (2005). I am scheduled for a 2nd injection in June. I also have been on Copaxone since April. So far, I think it is working. I just had fatigue, but I am getting over it with exercise and rest. With the second infusion, I think I gr...
by Brian
Mon Feb 28, 2005 1:22 pm
Forum: General Discussion
Topic: Multiple Sclerosis Drug Suspended After Death - Tysabri
Replies: 1
Views: 2211

Multiple Sclerosis Drug Suspended After Death - Tysabri

Did anyone see this? I got this from www.webmd.com Multiple Sclerosis Drug Suspended After Death New MS Drug Tysabri Pulled From Market Feb. 28, 2005 - The recently approved multiple sclerosis (MS) drug Tysabri has been voluntarily pulled from the market following reports of one death and one seriou...
by Brian
Fri Feb 25, 2005 6:40 am
Forum: General Discussion
Topic: Zonulin, intestinal permeability and MS
Replies: 10
Views: 4363

Zonulin, intestinal permeability and MS

If this proves out, then is MS an infectious disease vs. being an autoimmune disease?
by Brian
Thu Jan 13, 2005 10:58 am
Forum: Novantrone
Topic: Novantrone and Copaxone
Replies: 1
Views: 6691

Novantrone and Copaxone

I am going to a dual therapy approach to my PPMS starting in 2/05. It is going to be a combination of Novantrone and a daily injection of Copaxone for 6 months (until I get stabilized). Of course, I realize there is a lifetime limit I can have of Novantrone. Has anyone done a similiar combo therapy?
by Brian
Thu Jan 06, 2005 12:09 pm
Forum: General Discussion
Topic: When is your Birthday
Replies: 25
Views: 5479

March 21
by Brian
Thu Jan 06, 2005 10:49 am
Forum: General Discussion
Topic: Fish oil?
Replies: 21
Views: 4890

Well since I started taking it last week, I do feel a difference. It is suppose to reduce my Silent Inflammation. I was just wondering if it was a bunch of sales hype or if the rest of the world uses it.
by Brian
Thu Jan 06, 2005 7:16 am
Forum: General Discussion
Topic: Fish oil?
Replies: 21
Views: 4890

Thanks. Where do I get Essential 7?