Search found 125 matches

by NotFound
Wed Oct 26, 2011 10:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154611

Re: Post if CCSVI treatment did NOT work for you

Been about 9 month since my azygous was found to be candy-wrapped. 6 mm stent placed. No improvements. After unsuccessful trip to Poland (where "nothing was found") and a procedure in California (where I can not help but doubt if anything indeed has been done) - I do not have any more money to even ...
by NotFound
Sun Apr 03, 2011 9:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638775

Re: Occasional dull pain in my chest after procedure

Dear Dr. Sclafani, After having had the stent placed in my Azygous (at Pacific Interventionalists) I have been having intermittent (not very frequent either) dull pains where I think my azygous is. Somewhat below / at the level of the heart? Pain is not debilitating or anything, however it has me c...
by NotFound
Thu Mar 31, 2011 3:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Life returns for MS sufferer following U.S. surgery
Replies: 62
Views: 8389

I've also noticed the # of people here reading and/or participating has definitely waned in the past few months. So many people who used to post regularly suddenly vanished without a word or note about how their treatment went. I for one do not participate much anymore exactly because of the quarre...
by NotFound
Thu Mar 31, 2011 2:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638775

Occasional dull pain in my chest after procedure

Dear Dr. Sclafani, After having had the stent placed in my Azygous (at Pacific Interventionalists) I have been having intermittent (not very frequent either) dull pains where I think my azygous is. Somewhat below / at the level of the heart? Pain is not debilitating or anything, however it has me co...
by NotFound
Sun Feb 27, 2011 10:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 5858

I second (third, forth) the lawn chair idea!

Also, have somebody nearby with a camcorder, not necessarily a professional, but you know, YouTube is at times more popular than CBS news :-)

Image
by NotFound
Thu Feb 24, 2011 11:01 pm
Forum: General Discussion
Topic: MS not "auto-immune"--it is "normal-immune&qu
Replies: 10
Views: 3385

Another question is, if we produce so much ATP (which is the "energy currency" in the body), where is all that energy?

I am as fatigued as any MSer and having hard time figuring out how can that be with extra production of ATP.
by NotFound
Fri Jan 21, 2011 8:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I had my ccsvi procedure on Saturday!
Replies: 15
Views: 2983

SO great to hear Carrie! May you get better and stronger every day!
by NotFound
Fri Jan 21, 2011 8:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Day after Procedure
Replies: 9
Views: 1618

I did not fell "great" after the procedure but well enough to fly. Though I am not in a wheelchair.
by NotFound
Fri Jan 21, 2011 8:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PI still did not supply me with codes for insurance!
Replies: 11
Views: 2807

I finally got a reply! Whew.

Fogdweller, I got a hold of their staff over the phone a couple of times and thats what finally got me the results.
by NotFound
Wed Jan 19, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PI still did not supply me with codes for insurance!
Replies: 11
Views: 2807

If you cannot get a reply from P.I. by phone go to there web site and e-mail the doctor that did your surgery directly. Perhaps that will get you what you need. Just a thought. Done it several times. All of the Doctors were included on all of my e-mails. Cece, you are right, I should keep at them. ...
by NotFound
Tue Jan 18, 2011 7:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PI still did not supply me with codes for insurance!
Replies: 11
Views: 2807

PI still did not supply me with codes for insurance!

It's been over a month. They did supply me with angioplasty codes, but left out the $2000 worth (potential reimbursement) stent. I am e-mailing and calling, including all the e-mail addresses I know. I was getting some replies first, in form of "we are so sorry we'll get right on it", but now I am b...
by NotFound
Sun Jan 16, 2011 11:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: JCB's Liberation Journey PPMS
Replies: 54
Views: 11147

Glad to hear it was taken care of! Both Siskin and my current Dr. believe that the collateral formed quite some time ago. It is very large, as large as the jucular itself. Wow! Jugulars are rather big! I was always wondering... If the collaterals form so efficiently and take over sort-of-speak, why ...
by NotFound
Sat Jan 15, 2011 5:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone has boils after angioplasty ?
Replies: 3
Views: 1126

Not me.

I don't see that there would be a connection of sorts... maybe someone else?
by NotFound
Sat Jan 15, 2011 5:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What are symptoms of a blood clot after CCSVI?
Replies: 14
Views: 2742

I went to my local ER. Funny though, the doc I saw said "uh. I have no experience with jugular veins.. so I really don't know what to tell you". He talked with a radiologist and decided to do an ultrasound. The ultrasound showed that the vein was fine and had no tears etc. Didn't show any clots. So...