Search found 14 matches
- Thu Sep 23, 2010 1:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Today I was called and offered a date for treatment in Albany, NY: Oct. 27th. There was a cancellation... original call: May 24th... since I am from Canada, treatment will be in clinic... was quoted $3000 for venography, $2000 for angioplasty, $2000 per stent (if required) - but was told that start...
- Mon Aug 23, 2010 3:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
To begin with I would like to thank all those that have done so much work in getting information on this site and availble to people like myself. Words cannot express my thanks. I have not posted very much because I have had very little to information to offer. Now, to the topic of this thread. I m...
- Fri Aug 20, 2010 11:50 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
I also e-mailed Albany today. My initial call date was June 1st and this is the response I received: You are probably going to be scheduled the 1st quarter of 2011. As you know our list changes daily and we are in the process of scheduling people in the month of October right now. Once we complete t...
- Thu Aug 19, 2010 7:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Hope everyone is doing well, I just wanted to check in with Albany waiting list to see if anybody had received a call recently with an appointment no matter how far down the road the appointment is. This could give those of us anxiously waiting for our phones to ring an idea where they are an initia...
- Sat Aug 14, 2010 8:56 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Guys, I write to you from my hotel room in Albany, having been liberated yesterday. :) Woot! I was told that Albany is booked through January. They are the only group openly performing this procedure, folks, so it makes sense that they have a huge waiting list. They are working to knock off as many...
- Wed Aug 11, 2010 7:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
I received a call from Albany today and was scheduled for the procedure. I will have the procedure at the hospital because I have insurance. I have Medicare so I was immediately approved for the procedure. Here is my time line. Hope this helps: First call to Albany was on May 28th. First call back ...
- Wed Aug 04, 2010 3:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Congrats to your wife longman111. This does leave me a little confused because the other day we discussed someone who had received an appointment whose initial call date was around May 31 or June 1. This seems somewhat out of order. I certainly don't begrudge anyone getting an appointment. I was so ...
- Tue Aug 03, 2010 5:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
BevB, let us know as soon as u get a call. I am excited. I'll be sure to post as soon as I get the call. I know we're all anxious and excited to get our calls and to know where they are on the list and Rieja has given us a good idea with her call dates and she now has an appointment. I think this g...
- Tue Aug 03, 2010 2:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Congrats that is absolutely exciting news!!!! My initial call date was June 1st so I'm just wondering if other June 1st callers have received appointments or people in and around that date? Just wondering. My intial call was on the 31st or the 1st I believe. They called me back on June 2nd. I use t...
- Tue Aug 03, 2010 8:07 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
:) Glad to help out anyway I can. Yeah I first called back on June 2nd so you can guess at the timeframe from there... maybe someone backed out as well? <shrug> dunno Congrats that is absolutely exciting news!!!! My initial call date was June 1st so I'm just wondering if other June 1st callers have...
- Mon Jul 19, 2010 4:35 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Then when I tried to pose the very same argument you are using, this is what he said: Thank you, NotFound. Just to clarify, the reason it would affect patients other than yourself is that there are many patients ahead of XXX on our list. Suppose XXX formally contacted our office on May 20 and 75 ot...
- Sun Jul 18, 2010 1:30 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
I need to vent. This woman I know who has an appointment on August 6th in Albany is going to be the death of me (It's a good thing I rarely see her. She called approx 3 weeks before my June 1st call to the clinic but that's a whole other issue. While (what is the waiting list 7-800) wait anxiously s...
- Sat Jul 03, 2010 5:55 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
- Wed Jun 30, 2010 12:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225091
Good luck to the ones that are going to see Dr. Siskin. I received a call this morning offering me a date for 9/28. I can't take it because I'll be on my honeymoon. She said she would call me back to set up a later date. I'm still holding out hope for the Doctor in Seattle to come through. How grea...