This Is MS Multiple Sclerosis Knowledge & Support Community

just got home Dr. S, trip home was not bad at all. No major differences that I can tell yet, but I'll keep in touch & follow up.

It was great meeting you and being in your skilled hands.

NP

MarkW wrote:Please let the forum know if Dr Makris uses IVUS or not.

MarkW

he did not with my procedure and if not mistaken he does not use it at all in his normal practice

I am sorry to hear about some dissatisfied patients with Dr. Makris-I had high hopes the Midwest would have a viable choice for treatment. However, the lady doing the ultrasound testing does a first rate job (she trained under Dr. Sclafani's ultrasound technician at Brooklyn). Donnchadh I am not di...

he never said a word, but I know someone else who thinks it is worth a second look. After my 1 month follow up he didn't see a need in coming back for any additional follow up ultrasounds. I haven't spoken to him since that appointment and my condition has worsened the last 4 - 6 months with my mobi...

* Breath control when drinking water is improved. This happened after the first procedure too and I noticed when it went away. It's such an odd small thing. I don't have to stop to breathe when I normally would have to. Good to hear some symptoms are not back and your doing OK. I wanted to comment ...

No, while he checked the dural sinuses, it was found that my dural sinuses are healthy. No treatment was needed there. Originally I did not have this checked because it was before he was doing this as part of the standard procedure. As far as I know, he has only found a dural sinus abnormality in o...

I've been away a couple weeks and was reading back...did I see correctly Cece that you had your sinus veins ballooned on this second procedure? They were not done originally correct? Has Dr. S done this on many patients yet? If so do you know how the results are looking post-procedure? Thanks and I ...

I've been in touch with someone else treated by him on the CCSVI in MS fb page & they told me they've not seen any improvement in their symptoms. They did not go back for the 1 month follow up since no change. I know someone that is there right now for the ultrasound today, will report back when...

Have an appointment with my neurologist tomorrow morning, Forgot to update this post, neuro ordered a MRI of neck & spine...got a call that there are active lesions present. They gave me 4 options for new/change to my current medication treatment. I'm currently on copaxone. Not sure which way I...

I wanted to update this post as it has now been almost two months since the procedure. I had the 1-month post procedure ultrasound on June 28th, but after talking with Dr. Makris about two weeks ago I just now finally received the report. First off I've not seen any change to symptoms & with the...

Have an appointment with my neurologist tomorrow morning, I spoke with him last fall about CCSVI & he chalked it up with the other snake oil treatments (bee sting therapy etc.). So do I tell him I had the MRV & ultrasound which confirmed I was positive for CCSVI. Then I had the angioplasty p...

The iliac and renal veins could be checked if they weren't (I am not sure if Dr. Makris does these). he says he checked the illiac & nothing was found there, he did a left femoral vein entry The transverse sinus is trickier, you said you had someone talking about stenting there? Was that Dr. Ma...

Cece wrote: And this one, which is post-ballooning, do you see the collaterals still visible?

I do see the collateral & I did mention that while on the table & looking over the images immediately after the procedure

Good job MMQB, picked a good day for that...seeing as it is Monday

Waisting is when there the balloon has a 'waist' appear from the tight stenosis, that then gives way and the balloon is smooth in appearance. is what the arrow is pointing to what your referring to?? sorry that the arrow is a bit thick http://i1143.photobucket.com/albums/n627/np999/waisting/PN_0018...

Cece wrote:I see waisting in the azygous arch balloon, which is then gone in the second image, so that would seem good.

I don't see any waisting in the jugulars.
Cece

forgot to ask you this previously, but I've not seen this written elsewhere...what is waisting?

Thanks!