Search found 5 matches
- Sat Jan 29, 2011 3:47 pm
- Forum: Gilenya
- Topic: Switching from Tysabri to Gilenya
- Replies: 4
- Views: 5421
Switching from Tysabri to Gilenya
Does anybody know if there is a standard protocol for switching from Tysabri to Gilenya? Anybody did the switch?
- Sat Jan 29, 2011 3:43 pm
- Forum: Gilenya
- Topic: Gilenya Usage History
- Replies: 14
- Views: 8855
Al, I had venoplasty (the treatment for CCSVI) done on December 22 in San Diego, CA. I have no improvements at all and not worsening. But I haven't had any worsening since three years ago when I started Tysabri Currently, I'm in the process of switching from Tysabry to Gilenya. I believe the CCSVI i...
- Mon Jan 10, 2011 7:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Experiences/Thoughts about the Hubbard Foundation
- Replies: 25
- Views: 6224
Hi Rhonda, Here is my experience with the Hubbard foundation. As I mentioned before, I live in San Francisco and wanted to take part in a study in Stanford ( very close for me) but they didn’t know when they will start a study. I would like to be part of a study because I feel there is a lot that ne...
- Sun Jan 09, 2011 10:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Experiences/Thoughts about the Hubbard Foundation
- Replies: 25
- Views: 6224
Winnipeg Girl, I recently had venoplasty through the Hubbard foundation ( in December). It took two months from the time I contacted them to the time of the surgery. Follow the requirements on their website and they will contact you with more information. I live in San Francisco, so San Diego was th...
- Sat Jan 08, 2011 10:15 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: dr ponec in delmar?
- Replies: 4
- Views: 1935
Hi Onesickrace, I had surgery with Dr. Ponec on December 22 last year. The staff was wonderful and the doctor himself was excellent. They did three balloons ( two Jug and the Azygos). Unfortunately, I didn't get any improvement in my symptoms. Since the Hubbard protocol stopped doing the follow up M...