Search found 102 matches

by nellie
Fri Oct 12, 2018 8:02 am
Forum: Ampyra
Topic: generic dalfampridine
Replies: 0
Views: 1181

generic dalfampridine

Does anyone know if the generic ampyra can be purchased yet in the US. I read where Mylan has brought it to the market this month.
by nellie
Tue Oct 13, 2015 5:55 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Biotene - diahrea?
Replies: 10
Views: 3327

Re: Biotene - diahrea?

I am a member of the facebook for Biotin & spasticity seems to be a very common side effect. I also have this normally as a MS side effect so I was frustrated when it got worse after the biotin. I can say mine has lessened some after 3 mos. on it. So many of us have positive results on bladder issue...
by nellie
Mon Oct 12, 2015 12:32 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Biotene - diahrea?
Replies: 10
Views: 3327

Re: Biotene - diahrea?

3 mos. on biotin. Only problem is the stiffness many of us encounter taking it.
by nellie
Sun Oct 04, 2015 6:22 am
Forum: Undiagnosed
Topic: Seeking guidance—what testing should I have done?
Replies: 9
Views: 1617

Re: Seeking guidance—what testing should I have done?

Wobblylegs or Jimmylegs--Would you mind if I ask if wobblylegs is a female. I was comparing her test results for HGB & HCT and noticed the guidelines were different then what I was given. I am a female & told my HCT of 45.5 was high & HGB of 15.2 was high. She mentioned I might have polycythemia ver...
by nellie
Tue Jul 14, 2015 7:05 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: VITAMIN B7 FOR PMS
Replies: 13
Views: 4033

Re: VITAMIN B7 FOR PMS

Thanks--Yes I am a member. Appreciate your help though.
by nellie
Tue Jul 14, 2015 5:54 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: VITAMIN B7 FOR PMS
Replies: 13
Views: 4033

Re: VITAMIN B7 FOR PMS

Hi Seeva. I can't open the website. Says page not found. I'm interested in reading it since I will be starting Biotin soon. My neuro didn't object but didn't no anything about the study but then he's not a MS specialist. Thanks.
by nellie
Sun Apr 12, 2015 12:57 pm
Forum: General Discussion
Topic: Any one have neck pain?
Replies: 2
Views: 946

Re: Any one have neck pain?

I have numerous bouts with severe neck & back pain including intense spasms. I have multiple cervical spine lesions. In the beginning I would use Aleve & a heating pad but it would take days for relief. At one point I ended up in ER as it moved to my shoulders & I thought I might be having a heart a...
by nellie
Wed Mar 26, 2014 12:22 pm
Forum: Ampyra
Topic: Too expensive
Replies: 8
Views: 4338

Re: Too expensive

I will be losing my private insurance & will be going with a plan where medicare d is used for prescriptions. They have terrible coverage for ampyra. Does anyone know the requirements for ampyra assistance when on medicare d & not private insurance?
by nellie
Tue Jan 28, 2014 6:29 am
Forum: MS in the Golden Years
Topic: Shingles Vaccine ???
Replies: 4
Views: 7227

Re: Shingles Vaccine ???

I had the shingles shot a couple of years ago with no reaction at all. Shingles seem to run in my family & my neuro said it would be fine to get it. It went well.
by nellie
Thu Aug 08, 2013 12:55 pm
Forum: Drug Pipeline
Topic: SPMS drug?
Replies: 0
Views: 1421

SPMS drug?

Is anyone aware of any drug being used for spms?
by nellie
Wed Jan 16, 2013 6:15 pm
Forum: General Discussion
Topic: Influenza Vaccination?
Replies: 15
Views: 2172

Re: Influenza Vaccination?

I have asked numerous times & my neurologist has told me it's perfectly fine to get the flu shot. I am a firm believer in it this year for sure as my 30 yr. old niece is comatose & in critical condition with pnemonia after contracting influenza a. So sad to see.
by nellie
Wed Aug 29, 2012 6:53 am
Forum: General Discussion
Topic: Reclast
Replies: 0
Views: 768

Reclast

Has anyone had any experience with the Reclast infusion (once a year infusion for osteroposis)? Wondering if it has any negative effects on the ms. Thanks.
by nellie
Tue Jul 24, 2012 10:43 am
Forum: General Discussion
Topic: Anyone with MS received vaccines after DX
Replies: 14
Views: 1780

Re: Anyone with MS received vaccines after DX

I have the flu shot yearly & this past year a shingles shot. No reaction from the MS side.
by nellie
Thu Jan 19, 2012 6:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4117

Re: How are you doing since treatment??

It's been 1 yr. & 2 months for me. I had a complication from the procedure so I was pretty stressed. I am SPMS & the only positive result were no more sinus issues. Actually, because I was pretty stressed the numbness got worse & my walk & balance deteriated. Since insurance has denied the procedure...
by nellie
Sun Dec 25, 2011 4:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Merry Christmas and a HAPPY NEW YEAR to all of us!
Replies: 12
Views: 1368

Re: Merry Christmas

Cece--Merry Christmas & thanks for all you do to keep us informed everday. Your optimism & compassion is so uplifting giving us all hope for a better tomorrow. Hope you & your family had a great Christmas. God Bless!