Search found 144 matches

by bruce123
Tue Apr 02, 2013 4:22 am
Forum: General Discussion
Topic: Ottawa trials "cure" MS
Replies: 12
Views: 1584

Ottawa trials "cure" MS

Here is a link to an article in today's Ottawa Citizen newspaper. It refers to a study that has been ongoing for the past 13 years. It involves bone marrow transplants and so far they have cured all 36 patents treated. There has been one death. http://www.ottawacitizen.com/health/Ottawa+doctors+behi...
by bruce123
Tue Apr 02, 2013 4:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ottawa trials "cure" MS
Replies: 14
Views: 1613

Ottawa trials "cure" MS

Here is a link to an article in today's Ottawa Citizen newspaper. It refers to a trail that has been ongoing for the past 13 years here in Ottawa. They have been experimenting with bone marrow transplants and have cured all 36 people that they have treated. There has been one death. http://www.ottaw...
by bruce123
Wed Nov 07, 2012 5:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1605460

Re: DrSclafani answers some questions

My wife and I met a couple from Jersey in Dr. Sclafani's office on Oct. 24. If you would like to get in touch please send me a pm.

Bruce.
by bruce123
Tue May 22, 2012 12:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in two days
Replies: 47
Views: 5839

Re: CCSVI in two days

How much is due to CCSVI, to the normal stages of MS, to LDN, to Betaserone (in my 3rd month of that when it starts to become effective), or even to diet, is simply unknowable. No one can use me in a study as I have tried so many different things! My understanding of Betaseron may be different than...
by bruce123
Wed May 16, 2012 4:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: latest BNAC research
Replies: 7
Views: 1209

Re: latest BNAC research

The Siskin study plus my own experience suggest to me that the ultrasound is useless for detecting CCSVI. And even if it did work acceptably in the jugulars it cannot see anything in the azygos. You would still need to do the venogram for the azygos. So why bother? Just go straight to the venogram ...
by bruce123
Mon May 14, 2012 5:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I was interviewed on CBC News regarding CCSVI and FDA
Replies: 18
Views: 2500

Re: I was interviewed on CBC News regarding CCSVI and FDA

Nice job Marc. I have been interviewed a couple of times and I find it very difficult to put my thoughts together in front of a camera. You did a great job.

Bruce.
by bruce123
Thu Mar 22, 2012 10:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1605460

Re: DrSclafani answers some questions

All the best to you Dr. S.
by bruce123
Sat Feb 11, 2012 4:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nature of Things
Replies: 50
Views: 5154

Re: Nature of Things

I enjoyed the show. It was a bit out-of-date but it was for the general public, not for us on TIMS. I noticed that they changed the name of the documentary from the more sensational title that many of here on TIMS complained about a few months ago. I think the best quote was another great observatio...
by bruce123
Sat Jan 28, 2012 10:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 18 months of "progress" in the 7 MS Society imaging studies
Replies: 7
Views: 1686

Re: 18 months of "progress" in the 7 MS Society imaging stud

Cheer, I totally agree on the value of the study at Case Western. It was inaccurate for me to state that these studies are "wasting" millions of dollars. That's my frustration talking. I believe that all these studies are important and will contribute to the body of knowledge that we so desperately ...
by bruce123
Sat Jan 28, 2012 9:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 18 months of "progress" in the 7 MS Society imaging studies
Replies: 7
Views: 1686

Re: 18 months of "progress" in the 7 MS Society imaging stud

These studies frustrate the hell out of me. The studies themselves are fine, it is the groups that control the funding and decide on the direction of research that drives me crazy. Dr. Zamboni found the improving the drainage from the brain in people who had MS resulted in many of them having signif...
by bruce123
Tue Jan 24, 2012 8:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stents in the long run
Replies: 12
Views: 1323

Re: MarkW' on stents in the long run

MarkW wrote:My prediction is that their use will die out due to the complications currently seen.
MarkW
My prediction is that the use of stents will be perfected and made safe and will be used in all patients as the only way to insure the veins stay open. Of course, this is just a guess!

Bruce.
by bruce123
Fri Jan 20, 2012 7:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4120

Re: How are you doing since treatment??

has she been tested since her treatment? if she shows any signs of CCSVI then i would consider a second treatment. She has not been tested because we don't see any value in the travel and expense of getting tested unless we have already decided to do something about the results. If we are not willi...
by bruce123
Thu Jan 19, 2012 3:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4120

Re: How are you doing since treatment??

Thanks Doug, that is a great story. It gives me hope. Having that kind of improvement on a second treatment is not the norm. I am very happy for you both. Dr. S is definitely the one we would go to if we decide to try again. As my brave wife deteriorates, the reasons for trying again become more and...
by bruce123
Thu Jan 19, 2012 8:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4120

Re: How are you doing since treatment??

my partner woke me up at 5:00 this morning. said she couldn't sleep. i asked why? "cause I'm walking like a normal" no weakness, no numbness, no balance issues. this is 3 months post treatment (second treatment) she was so excited she danced a little jig Hi Doug. I'm not familiar with your story. I...
by bruce123
Tue Jan 10, 2012 5:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4120

Re: How are you doing since treatment??

Hi Magoo. Your early posts here on TIMS were very inspirational. My wife had the procedure 13 months ago. She had moderate improvements in balance and major improvements in fatigue. The biggest improvement was with her recurring neuropathic pain in her left arm. This sever pain has stumped numerous ...