Search found 45 matches

by Kathryn333
Tue Apr 17, 2012 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: are we failing to advocate and provide information
Replies: 11
Views: 2741

Re: are we failing to advocate and provide information

I called the Berringer home to see how Ross is doing. The travellers have been delayed and are expected home tomorrow. I spoke to Ross's sister Brenda. It was a seven-hour procedure, and Ross has shown some improvements. Brenda has agreed to post the details on this thread, and we can also follow hi...
by Kathryn333
Sat Mar 24, 2012 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: are we failing to advocate and provide information
Replies: 11
Views: 2741

Re: are we failing to advocate and provide information

I will, Cece. I did ask him if they had been on TIMS. He wasn't sure; it's his wife that's done most of the research.

He did tell me they're not expecting a miraculous recovery; they're hoping to stop the progression.

I thought I knew most of Ontario, but I'd never heard of Shabaqua.

Dorothy
by Kathryn333
Sat Mar 24, 2012 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: are we failing to advocate and provide information
Replies: 11
Views: 2741

Re: are we failing to advocate and provide information

I called and spoke to Ron Berringer, the brother-in-law. They have done a lot of research, and they are very well-informed on the options available to them. He knew of several CCSVI doctors. Ross is having a stem cell procedure along with the CCSVI procedure. A good part of the cost is the travel fo...
by Kathryn333
Fri Mar 23, 2012 4:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698261

Re: DrSclafani answers some questions

Dr. Sclafani, I'm so glad the problem was treatable and you're recovering. Take care of yourself and get lots of rest.

How did you like being the patient?

Dorothy
by Kathryn333
Thu Mar 22, 2012 5:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698261

Re: DrSclafani answers some questions

Good luck, Dr. Sclafani. Get well soon.

Dorothy
by Kathryn333
Sun Oct 02, 2011 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189238

Re: Cece's turn

Hi, Cece. I'm so happy to read your latest update. Continue to heal. Congratulations. :smile:

Dorothy
by Kathryn333
Fri Sep 09, 2011 7:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189238

Re: Cece's turn

Hi, Cece. I'm so happy to read your good news. Congratulations. :smile:

Dorothy
by Kathryn333
Mon Sep 05, 2011 5:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 60590

Re: Montel's announcement

The new season starts September 12th.
by Kathryn333
Tue Aug 23, 2011 5:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 911826

Mavis, I've been going to Dr. Sondhi in Mississauga since last October. Dr. Flanagan recommended him through Dr. Woodfield. He's very good.

I found there are very few NUCCA doctors in Ontario.

Good luck. If you decide to go to him, I hope he can help you. :)

Dorothy
by Kathryn333
Mon Jul 18, 2011 5:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 41099

I attended the patient day on Friday. What an experience it was. It was wonderful to meet so many patients in attendance and hear their stories. I read about successes, but this time I met some of them. I arrived just after 8:30. I saw Dr. Sclafani, but he was busy talking to someone. I met a couple...
by Kathryn333
Mon Jul 11, 2011 2:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189238

Cece, I've been thinking about you all day. Congratulations to you and Dr. Sclafani for a successful procedure. Get lots of rest and drink your water. You have a busy week ahead of you. :)
Dorothy
by Kathryn333
Sat Jul 09, 2011 3:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189238

I was surprised to read your news, Cece. Good luck on Monday. I'll be thinking of you.
I plan to be at the symposium on Friday, and I look forward to meeting you. :)
Dorothy
by Kathryn333
Thu Jun 02, 2011 6:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698261

Thank you for your kind words of appreciation. It means a lot to me. Preparing those cases takes upward of two hours to do. When few questions arise, i wonder whether it is valuable to patients. DrS I don't post on this thread because I don't know enough to ask an intelligent question, but I ALWAYS...
by Kathryn333
Mon May 30, 2011 6:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 9880

Welcome home, Johnson. We were all so worried about you. I'm so glad to read about your improvements and look forward to more details when you're up to it. :D :D :D
by Kathryn333
Mon May 09, 2011 5:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189238

All the best for tomorrow Cece. Hey!, I have to say thanks so much for all the assistance and support you give to all of us here, YOU MAKE A DIFFERENCE IN THIS WORLD! Hardly a day goes by without me noticing how your words or help impact people on this site in particular. You are special. Thanks Ce...

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