Search found 45 matches
- Tue Apr 17, 2012 6:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: are we failing to advocate and provide information
- Replies: 11
- Views: 2741
Re: are we failing to advocate and provide information
I called the Berringer home to see how Ross is doing. The travellers have been delayed and are expected home tomorrow. I spoke to Ross's sister Brenda. It was a seven-hour procedure, and Ross has shown some improvements. Brenda has agreed to post the details on this thread, and we can also follow hi...
- Sat Mar 24, 2012 8:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: are we failing to advocate and provide information
- Replies: 11
- Views: 2741
Re: are we failing to advocate and provide information
I will, Cece. I did ask him if they had been on TIMS. He wasn't sure; it's his wife that's done most of the research.
He did tell me they're not expecting a miraculous recovery; they're hoping to stop the progression.
I thought I knew most of Ontario, but I'd never heard of Shabaqua.
Dorothy
He did tell me they're not expecting a miraculous recovery; they're hoping to stop the progression.
I thought I knew most of Ontario, but I'd never heard of Shabaqua.
Dorothy
- Sat Mar 24, 2012 6:56 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: are we failing to advocate and provide information
- Replies: 11
- Views: 2741
Re: are we failing to advocate and provide information
I called and spoke to Ron Berringer, the brother-in-law. They have done a lot of research, and they are very well-informed on the options available to them. He knew of several CCSVI doctors. Ross is having a stem cell procedure along with the CCSVI procedure. A good part of the cost is the travel fo...
- Fri Mar 23, 2012 4:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2698261
Re: DrSclafani answers some questions
Dr. Sclafani, I'm so glad the problem was treatable and you're recovering. Take care of yourself and get lots of rest.
How did you like being the patient?
Dorothy
How did you like being the patient?
Dorothy
- Thu Mar 22, 2012 5:32 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2698261
Re: DrSclafani answers some questions
Good luck, Dr. Sclafani. Get well soon.
Dorothy
Dorothy
- Sun Oct 02, 2011 6:15 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 189238
Re: Cece's turn
Hi, Cece. I'm so happy to read your latest update. Continue to heal. Congratulations.
Dorothy

Dorothy
- Fri Sep 09, 2011 7:03 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 189238
Re: Cece's turn
Hi, Cece. I'm so happy to read your good news. Congratulations.
Dorothy

Dorothy
- Mon Sep 05, 2011 5:32 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Montel's announcement
- Replies: 228
- Views: 60590
Re: Montel's announcement
The new season starts September 12th.
- Tue Aug 23, 2011 5:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 911826
- Mon Jul 18, 2011 5:33 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
- Replies: 158
- Views: 41099
I attended the patient day on Friday. What an experience it was. It was wonderful to meet so many patients in attendance and hear their stories. I read about successes, but this time I met some of them. I arrived just after 8:30. I saw Dr. Sclafani, but he was busy talking to someone. I met a couple...
- Mon Jul 11, 2011 2:10 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 189238
- Sat Jul 09, 2011 3:53 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 189238
- Thu Jun 02, 2011 6:49 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2698261
Thank you for your kind words of appreciation. It means a lot to me. Preparing those cases takes upward of two hours to do. When few questions arise, i wonder whether it is valuable to patients. DrS I don't post on this thread because I don't know enough to ask an intelligent question, but I ALWAYS...
- Mon May 30, 2011 6:44 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Brooklyn-bound
- Replies: 44
- Views: 9880
- Mon May 09, 2011 5:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 189238
All the best for tomorrow Cece. Hey!, I have to say thanks so much for all the assistance and support you give to all of us here, YOU MAKE A DIFFERENCE IN THIS WORLD! Hardly a day goes by without me noticing how your words or help impact people on this site in particular. You are special. Thanks Ce...