Search found 11 matches

by defneamber
Thu May 12, 2011 7:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What was your MS "Trigger"
Replies: 37
Views: 8377

My first event happened after serious sun poisoning. I was very burnt, and very sick afterwards for a week and then i woke up one morning and my whole left side was numb, i could hardly walk.
by defneamber
Tue Feb 22, 2011 7:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for the women
Replies: 4
Views: 2349

I would not recommend getting a wax since the area waxed will be tender. I think a better idea would be to shave the area so it does not cause any extra pain because of the incision.
by defneamber
Mon Dec 27, 2010 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can stopping meds after ccsvi cause the worsening of ms?
Replies: 8
Views: 2918

I think that ms might still have an autoimmune nature as well as vascular nature. If ccsvi is one of the answers I think keeping your immune system from attacking myelin might be the other answer after surgery.

But thats just my thoughts
by defneamber
Mon Dec 27, 2010 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can stopping meds after ccsvi cause the worsening of ms?
Replies: 8
Views: 2918

Thanks for your kind responses. I actually am not considering stopping my meds. I am just trying to make sense out of why are some people getting worse after treatment.
by defneamber
Mon Dec 27, 2010 8:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can stopping meds after ccsvi cause the worsening of ms?
Replies: 8
Views: 2918

Can stopping meds after ccsvi cause the worsening of ms?

I am scheduled to have the ccsvi precedure on jan 11th in albany. Even though I am going through with the surgery, I do not believe this is the complete answer to MS and I decided to stay on Avonex as long as I can. I am reading some experiences of some small percentage of people getting worse after...
by defneamber
Wed Dec 08, 2010 8:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 77139

I called july 12th and got a call back in november 17th to schedule on dec 29th. due to work schedule (retail) I asked if I could be scheduled in jan.
Today I got my call and I am scheduled for Jan 11th.

I have insurance and I will be treated at the hospital

Sooooo Excited:)
by defneamber
Tue Nov 09, 2010 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 77139

yes my appointment is for the hospital bc of insurance.
by defneamber
Tue Nov 09, 2010 9:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 77139

Hi Tims Friends; I called Dr. Siskin's office in july 15th, a week later they called and got info and told me that I was on the list. Late september I called back to inquire about my dates and they told me that they did not have a date yet. So I emailed Dr. siskin and in Oct he sent an email back sa...
by defneamber
Sat Aug 14, 2010 2:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have been LiBEARated!
Replies: 31
Views: 7316

Congats. Mine is in december in Albany can't wait. I am very happy for you and wish you continued recovery
by defneamber
Sat Aug 14, 2010 2:08 pm
Forum: Introductions
Topic: New From Ohio
Replies: 2
Views: 1650

Thanks:)
by defneamber
Fri Aug 13, 2010 7:18 pm
Forum: Introductions
Topic: New From Ohio
Replies: 2
Views: 1650

New From Ohio

Hi there; My name is Defne and I have been diagnosed about a month ago, but I have been quite familiar with MS. My mom had it as long as I can remember. Doctors don't know what type of ms she has because when her ms started they did not even know what MS was in Turkey (where I am originally from). I...

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