This Is MS Multiple Sclerosis Knowledge & Support Community

The anchor who called me has gone through having a brain tumor, brain surgery etc and is very interested in this as a way to HELP people w/ MS - at least that's what she said. They have received A LOT of letters, emails about this and one way or another there going to do a story. Also she talked abo...

Don't know date, but I'll keep everyone posted. A while ago a few of us emailed them telling them this should be on the news and we never heard back, but my friend works there and his wife has MS so he's been trying to push the story through. And Danielle - who I just met at our CCSVI meeting (who h...

Hey, just got a call from my local news, they want to document my CCSVI.. Another local woman and I are being treated there the same day and they might send a camera crew to cover it for their story! Awesome! More awareness for CCSVI !!

I love Hawaii Selkie ;) before my MS got bad I danced Hula for about 6 yrs, and took about 5 trips to Hawaii - Maui and Oahu! I want to go back hopefully when heat sensitivity and symptoms are better after angio ;) Aloha from Seattle!

I do believe Selkie heard from Arlene Hubbard and the confusion on which tests are done has been cleared up, Selkie - would you post so that people know this has been straightened out? It is all the scans I listed before, and to my knowledge no one has been turned away though at some point, someone'...

I'm sure she mistakenly said MRI - because it is a fMRI machine or thought you needed to know what to get rx for. I know for a fact that they do all the tests I listed, as I know many people who have been tested there also, and my report from Dr. Haacke is 36 pages long! Extremely thorough. I have h...

It is a MRV for CCSVI and everything I listed is included but the prescription from your doctor only has to say "MRI for MS" They need that in order to test you for CCSVI. I just asked Arlene Hubbard about this and since I don't know your name she asked that I have you email her with any q...

Thanks Pam for posting my message, I was waiting for account confirmation. I was tested at The Hubbard Foundation June 24th and had the following scans: MRI of brain w/ and w/o contrast - T1, 3D FLAIR, 3D SWI MRA of head w/ and w/o contrast - Flow quantification MRA of neck w/ and w/o contrast - 3D ...