This Is MS Multiple Sclerosis Knowledge & Support Community

DougL: Did the procedure improve symptoms any? The two doctors we spoke with gave the opinion to just wait and hope for further advances in the future. My husband has PPMS and is pretty much a quadraplegic. Has feeling in his arms and legs - just can't move them. We were hoping that he may get a lit...

I had a second opinion from the doctors in Albany NY. I asked why they couldn't just use smaller balloons. They said it was a good question and they could use smaller balloons but with narrow veins there is a greater chance of blood clots and they agreed with the doctor in Rhode Island on his decisi...

My husband and I went to Rhode Island for him to have the CCSVI procedure. Our only thoughts were after the procedure will be see any improvement - not even thinking that they would not be able to do the procedure because his veins were too narrow. The veins must be between at least 8mm (my husband'...

ppicklee: Isn't it great what technology can do - Randy's new chair has given him some "freedom". He can control the TV (turn it on/off, change channels, turn sound up/down) and he can also move his computer icon (open/close programs, go up/down/side to side) all with his head controls. We...

Hi ppicklee: It actually seemed that once they dx Randy with PPMS the doctors just forgot about him as there is no meds for PPMS. Every year he would see the neurologist who would sit behind his desk and say how are you doing and then advise no news on treatments for PPMS and then say see you next y...

Oreo:

I can be blunt too - you would do well in a "Big Brother" Society where people are told what you can and can't do. I was not having a "temper tantrum" I was only voicing an opinion.

http://news.sympatico.cbc.ca/local/sk/sask_ms_trials_will_take_time_clinic_director/ed7c0779 "The question is, will there be more benefit than harm by doing a premature treatment trial and possibly treating people that shouldn't be in the treatment group or missing people that should be in the ...

Hi, Mud My husband has PPMS (diagnosed 1997) and pretty much a "quad". One of my concerns was his breathing. He could say a few words and then I would see him try to take a breath in order to continue to work. The doctors also notice it and said that because his posture was so bad he was c...

Thank you so much for the article on Barb Farrell. I am so glad that Mrs. Farrell is doing so well. It was so gratifying to read the story and about the good simaritan to made it possible. I would consider him to be a guardian angel sent to Mrs. Farrell. I hope she and her husband continue to post h...

Hi, I'm ScottieSue. My husband was diagnosed with PPMS in 1997 and has declined to the point that he is pretty much a quadraplegic. I have read many stories from people with various stages but I am wondering if anyone else has progressed as far as my husband. I have him registered with Albany but I ...