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by David1949
Mon Sep 06, 2010 8:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood thinners
Replies: 8
Views: 2960

Blood thinners

As far as I know following Liberation treatment patients are required to take blood thinners. Is this for a fixed period of time or must they be taken permanently?
by David1949
Mon Sep 06, 2010 8:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why do stenoses occur?
Replies: 12
Views: 2902

Why do stenoses occur?

Has anyone seen any theories as to why stenoses occur? Are we born with them? If so, why doesn't MS start at birth rather than in the mid 30's.
by David1949
Fri Sep 03, 2010 1:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and sinus problems
Replies: 17
Views: 6243

Had hayfever all my life but the last few years I've had nasty sinus congestion at times of the year when I never had allergies before. My family doc said it's not related to MS. He also said that if I was taking the MS meds those could cause me to catch colds because they suppress the immune system...
by David1949
Wed Sep 01, 2010 10:13 am
Forum: General Discussion
Topic: Diagnosis of PPMS vs RRMS
Replies: 2
Views: 2756

I have had zero relapses and/or remissions in 15 years with MS. I don't take any drugs for MS. In the past I followed the Swank diet although not for the past few years. My EDSS is about 5. I can walk 100 yards without a cane, brace etc. With my orthotic foot brace I can go about 1 mile, slowly. I w...
by David1949
Tue Aug 31, 2010 11:00 am
Forum: General Discussion
Topic: Diagnosis of PPMS vs RRMS
Replies: 2
Views: 2756

Diagnosis of PPMS vs RRMS

Does anyone know how neurologists determine what type of MS we have? I was dxed with MS about 15 years ago. The neuro sent me for an MRI which came back positive for MS, (little white spots on the brain). He told me in no uncertain terms that I have MS, although he could not or would not tell me wha...
by David1949
Wed Aug 25, 2010 2:55 pm
Forum: Betaseron
Topic: What are the benefits of Betaseron?
Replies: 8
Views: 9207

What are the benefits of Betaseron?

From what I understand Betaseron and similar drugs are touted as reducing the number of relapses. Is that correct or can they slow disease progression as well?

I have never had relapses in my 15 years with MS so I never started taking any of those drugs.
by David1949
Wed Aug 25, 2010 2:47 pm
Forum: Betaseron
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 1
Views: 6356

$6.1 billion per year! Wow ! Well I guess we can say with 100% certainty that the drugs are beneficial... to the drug companies. :-)
by David1949
Wed Aug 25, 2010 2:15 pm
Forum: Introductions
Topic: Newbie
Replies: 4
Views: 1685

dlb
Thanks for the info. I'll look into it.

ppicklee
Hi back to you. :-)
by David1949
Tue Aug 24, 2010 7:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Percentage of people helped by Liberation therapy?
Replies: 4
Views: 2233

Cece
Thanks for that info. A 2/3 chance of at least some improvement sounds really good, vs no chance if nothing is done.
by David1949
Tue Aug 24, 2010 3:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Percentage of people helped by Liberation therapy?
Replies: 4
Views: 2233

Percentage of people helped by Liberation therapy?

I'm new to this site so please excuse me if this topic has been raised before. It seems that quite a few people here have had the Liberation procedure. Some have improved and some have not. Has anyone tallied up the numbers to see what percentage have experienced improvements?
by David1949
Tue Aug 24, 2010 2:28 pm
Forum: Introductions
Topic: Newbie
Replies: 4
Views: 1685

Newbie

Hi My name is David. I'm 61. My MS symptoms began in 1994. They were very minor then, just a little numbness in my left thumb. In 1996 I started getting the electric shock sensation running down my spine. I forget what they call that. The DX came at that time. Happily the electric shock sensation we...

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