Search found 67 matches

by patticake66
Wed Jul 24, 2013 9:44 am
Forum: Copaxone
Topic: FDA accepts Teva's sNDA for Copaxone dose
Replies: 6
Views: 2341

Re: FDA accepts Teva's sNDA for Copaxone dose

My doctor has been prescribing copaxone every other day, 20mgs, for two years now. Her decision was based on 2 small studies that showed that copaxone prescribed this way is just as effective as taking it everyday. Teva is trying to hang on to the market because of Tecfidera. It wouldn't surprise me...
by patticake66
Tue Apr 02, 2013 3:18 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - a mistake to make it oral?
Replies: 24
Views: 12674

Re: Tecfidera - a mistake to make it oral?

These symptoms you mention subside within one month's time in almost all patients. Don't you think one month of discomfort is worth not having to inject poison everyday? Think about what you are saying. This medication is way more safe than any other MS med. and way more effective. I could see not t...
by patticake66
Mon Mar 11, 2013 8:05 am
Forum: Low Dose Naltrexone
Topic: LDN and Copaxone
Replies: 7
Views: 4095

Re: LDN and Copaxone

I have also been on LDN 3mg (for three years) and copaxone every other day. First attack in March '09. No new lesions or attacks since then. I believe it is the LDN.
by patticake66
Thu Dec 13, 2012 5:41 am
Forum: Copaxone
Topic: Copaxone working this soon!
Replies: 13
Views: 5481

Re: Copaxone working this soon!

I find that if I inject in my stomach and around my waist, I don't get lipotrophy. I will not inject in my arms or legs...just in the areas located within the fattiest areas of my torso. Occasionally I inject into my buttocks...no lipo there either. I have been injecting for 3 and 1/2 years and just...
by patticake66
Wed Nov 21, 2012 4:35 am
Forum: General Discussion
Topic: As MS pills debut, doctors prescribe a dose of caution
Replies: 2
Views: 1055

Re: As MS pills debut, doctors prescribe a dose of caution

Why doesn't this woman know that copaxone can be room temp.? It comes packed in ice and then I leave my months dosage in the cabinet. It doesn't always have to be refrigeratored. I wish I could let her know. I am sure it would make her life much easier.
by patticake66
Sat Oct 06, 2012 3:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Annette Funicello
Replies: 21
Views: 3676

Re: Annette Funicello

I don't get it...why would anyone, especially those of us afflicted with MS, want to watch a person slowly deteriorating, actually dying in a painful, horrible way? Move on people....no wonder depression is so prevalent with this disease. What good is watching? So we can see what the rest of us are ...
by patticake66
Sun Sep 30, 2012 4:38 am
Forum: Copaxone
Topic: New to MS, new here too...Copaxone every other day?
Replies: 6
Views: 3534

Re: New to MS, new here too...Copaxone every other day?

I was diagnosed in March of 09 with numbness in both legs. MRI showed 3 lesions on brain and spine. I started Copaxone 2 months afterward and haven't had a flare up since. That really doesn't matter since every person who gets MS gets it differently and at a different rate. And no one can tell how y...
by patticake66
Mon Aug 27, 2012 12:20 pm
Forum: Low Dose Naltrexone
Topic: New lesions after 10 months on LDN
Replies: 22
Views: 16004

Re: New lesions after 10 months on LDN

Why is this on the LDN page? I think this belongs on the copaxone page.
by patticake66
Sun Aug 05, 2012 6:53 am
Forum: Low Dose Naltrexone
Topic: anyone prescribed a.m. LDN ?
Replies: 4
Views: 4813

Re: anyone prescribed a.m. LDN ?

I have been taking LDN for two and a half years. My neuro told me to take it at night (3mg). She told me it would make me tired. Ever since I started taking it, it is extremely difficult for me to get up in the morning. Before I started taking it, I would spring out of bed at 5 a.m., not anymore. Al...
by patticake66
Wed Aug 01, 2012 3:38 pm
Forum: Low Dose Naltrexone
Topic: LDN and bladder issues
Replies: 4
Views: 5087

Re: LDN and bladder issues

I have been having more sore throats and colds since I started taking LDN. Don't have and never had bladder issues so I can't help you there.
by patticake66
Wed Jul 25, 2012 5:54 am
Forum: Copaxone
Topic: 2 months on Copaxone
Replies: 8
Views: 3290

Re: 2 months on Copaxone

sorry....I know how overwhelming it can be. Google LDN for MS and read all about it. There is plenty of info out there to give you an idea of what it is. There is also an LDN board on thisisms. I know it is not an easy time but I found that the more I educated myself on MS and everything about it, t...
by patticake66
Tue Jul 24, 2012 4:24 pm
Forum: Copaxone
Topic: 2 months on Copaxone
Replies: 8
Views: 3290

Re: 2 months on Copaxone

Maybe there is a chance that all of this will subside over time. Maybe it is your body's way of getting used to the medication. I can't say I know how you feel but copaxone doesn't start working until it is in your body for at least 7-9 months. My advice....I don't know how bad your physical state i...
by patticake66
Tue Jul 24, 2012 4:05 pm
Forum: Copaxone
Topic: 2 months on Copaxone
Replies: 8
Views: 3290

Re: 2 months on Copaxone

Hi...I have been on Copaxone for 3 years. For the past two, I have been getting red, itchy patches/bumps/hives on my legs...especially my calfs. They come and go. Sometimes I get 4 to 5 at a time and then I will just get 1. I take Copaxone every other day along with LDN. I didn't know what to do abo...
by patticake66
Tue Jul 24, 2012 2:28 pm
Forum: Low Dose Naltrexone
Topic: I have definitely progressed while on LDN
Replies: 31
Views: 10688

Re: I have definitely progressed while on LDN

MSnik....because of you I am tempted to call my neuro and ask for the results of my MRI...I don't want you to feel that you are alone...I find it impossible to believe that you are. I feel that LDN is so hyped up that when a person experiences lesions while on it, they are so disillusioned that they...
by patticake66
Tue Jul 24, 2012 6:56 am
Forum: Low Dose Naltrexone
Topic: I have definitely progressed while on LDN
Replies: 31
Views: 10688

Re: I have definitely progressed while on LDN

All I need to do is call my neuro and ask her for the results of my last MRI (Jan.). But knowing that I have developed lesions while on LDN would put me in a depression. I physically and emotionally feel great and I don't want to upset that. I am trying to hang on to these feelings as long as I can....