This Is MS Multiple Sclerosis Knowledge & Support Community

CeCe, thanks, have been revisiting this theory....
Makes very good sense......
Gosh, excellent sense.....

This surgery is done in Canada and has nothing to do with MS. I would be very surprised Dania, if you would be turned away outside Quebec. I am very sorry you had to go through this. 10 people, known, have had this done here in Canada, 2of whom were doctors. Why did he leave California to do this? I...

CeCe and others Does Paolo not go in Lt groin and do the 5 you refer to? When people now refer to Zaboni protocol, what are they exactly referring to? Is the diagnostic gold standard venogram? What is the Haake diagnostic protocol, Who else besides Sclafani and McGuckin are doing Lt groin, 5 veins t...

Someone said better malformed valves better than none. I have none and experiencing the symptoms of which Cheerleader speaks. I would advise very careful research. I have no recourse, or intercourse, for that matter. Dr Dake has proved to be open and knowledgable. Collaborative research is responsib...

Nice try If that is all it took to get Arata on Tims.... He is not interested enough in his clients, To come and be real. He doesn't have the integrity of a Sclafani. Narcissists only come out to brag Egotists come out to say they are the best in the world. Words are easy. Actions not so much. He wi...

I would not return to see Arata. No collaborative research. Does not do renals or ileac. Way too rushed. It looks like he treats by symptoms(?) and percentages. That is unsafe in my mind. I think he was on top at one time. He has lost ground. Does no collaborative research. His business plan is look...

Cecelia can we start this thread up again for things have progressed since last postings.

Dr Scalfani caught at airport in a lightening and thunder storm and his booking is still valid at the hotel

Cece do either usually post here on a regular basis?

I too worry for Kathleen, but honor her space and privacy. She has a good support group. I wish her well, send warm and supportive hugs.
Many Canadians are a supportive army behind her.
When she is ready.
We are hear with open arms and hearts.

Mr Success, I agree with your last statement. Our rights are being trampled. So what have we got to lose by asking Sal or David to wear a wire. Or any of the other participants. Tape the session, or video it. Where are the clients being represented? Let's open the doors. Let's let fresh air and sunl...

To MSRely,
I appreciate your sentiment.
You clearly must work for The Society.
Most unfortunately believe that
The best predictor of future behavior
Is past actions.
National has not cultivated trust.
Many sadly feel this is a PR ruse.
Please prove me wrong.

Polly Anna

Sorry, success for the unintentional bump!
But what a great idea.....no???
Yves continually spews word salad.
Why is there not a client advocate in the room?
Alas, this may be a lost opportunity!

June 17th ...... plenty of time for angry MS'ers to turn up the volume and demand an open door policy ...... and allow the presenters to provide visual aids .... as we know ..... " a picture is worth a thousand words " and Dr . Sclafani ...... you are " A Number 1 ... Top of the heap...

I agree with love bug...send 3 emails the 1st day....include your phone #.
then call Jessica 3times the next day......since you are obviously close to your date, this should work....it did for me. Some folks are on 3or4 lists elsewhere and this is complicating planning......P