Search found 133 matches

by stillfighting
Sat Sep 21, 2013 12:12 pm
Forum: Undiagnosed
Topic: Clean MRI. Help?
Replies: 12
Views: 2458

Re: Clean MRI. Help?

You need to get a second opinion and see about a spinal tap.
by stillfighting
Thu Sep 05, 2013 6:47 am
Forum: Undiagnosed
Topic: Questions about lesions
Replies: 9
Views: 2966

Re: Questions about lesions

http://www.msdiscovery.org/news/news_synthesis/322-more-meets-eye I was not sure I could find this link. I am posting it many of you may have seen it. I found it very interesting. Of course I know we/I am not a dr. It does not take a genius to see with the eye why an mri is not the whole story. With...
by stillfighting
Thu Sep 05, 2013 6:20 am
Forum: Undiagnosed
Topic: Questions about lesions
Replies: 9
Views: 2966

Re: Questions about lesions

In order for a neuro to know that 2 or more area's of the brain or spine are affected. He has to see this on a neuro exam. These are things that can't be faked. I am not totally familiar with what they would be there are too many to name.. the babinski sign.. Optic N.. ( a trip to an eye specialist ...
by stillfighting
Sun Mar 10, 2013 10:18 am
Forum: Regimens
Topic: Alpha lipoic acid and L-Cartinine
Replies: 15
Views: 8152

Re: Alpha lipoic acid and L-Cartinine

I am currently on Cymbalta, and Tysabri.. the cymbalta was prescribed by my GP. Yes, neuro is an PIA. I have been on LDN in the past and it did not help. I appreciate your advice..
Please remember this too, I would change neuro's if I could. Do not always just go to a Dr who tells you what you want.
by stillfighting
Sat Mar 09, 2013 2:34 pm
Forum: General Discussion
Topic: This method put Mary's probable MS into remission in 4 days
Replies: 43
Views: 6761

Re: This method put Mary's probable MS into remission in 4

No one is trying to sell anything. It sounds crazy and I don't meet the criteria. I am on Tysabri. I don't have anything to loose by getting organic cotton and sticking it in one ear. I am going to do it, I have tried a lot worse, more dangerous.. invasive and expensive. Why don't you all just stick...
by stillfighting
Thu Oct 25, 2012 2:58 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

I have scheduled my tysabri infusion, I do not have another neurologist to go to. My neuro has refused any medications for pain. My family knows I post my story here, I have let them know my user name in case something happens to me. There is more to my pain than I have posted and some more to my ne...
by stillfighting
Tue Oct 23, 2012 2:17 pm
Forum: Natural Approach
Topic: Another benefit of green tea
Replies: 8
Views: 2510

Re: Another benefit of green tea

I am going to make some of that right now.
Thanks for reminding me.
by stillfighting
Mon Oct 22, 2012 8:39 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

I did mean that sarcastic about the Touch program. I have had nothing done but to tell me to show up for the infusion, NOW. I have heard stories about Dr's being pushy like this. I am just now living it. It is a really bad experience. I can't believe it's because he feels he has my best interest at ...
by stillfighting
Mon Oct 22, 2012 7:56 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

Thanks I will check it out. All I really wanted to discuss was if he thought it was rational to wait and maybe do a once i .v of solu medrol. Or if he had any plan of how to come off of Tysabri .. if I could not take it or if/when I wanted to come off of it. NOT he is not having any conversation. JU...
by stillfighting
Mon Oct 22, 2012 7:12 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

I am trying I he won't be an option much longer any way. He has made it clear he will not script any meds other than Tysabri. Can you believe that! Can YOU really. I can't I really can't, I did not have any one with me to prove what he said. He has 3 other neuro's in the same practice ( they have a ...
by stillfighting
Mon Oct 22, 2012 5:05 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

What may I ask just is the TOUCH program? I have done everything I can do my neuro has all but fired me. He insist I mean insist I take this drug. He won't allow me to have any conversation about this drug. I ask questions. He said " all drugs have side effects" He said I don't need the anti body te...
by stillfighting
Sat Oct 20, 2012 7:12 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases now reach 298
Replies: 15
Views: 4847

Re: PML Cases now reach 298

So tell me why do people say the odd are so slim? like 1 in 1000? Are those good odds to any of you?
by stillfighting
Fri Oct 19, 2012 4:37 pm
Forum: General Discussion
Topic: pLEASE PLEASE Help I am desperate for advice with M.S
Replies: 9
Views: 1415

Re: pLEASE PLEASE Help I am desperate for advice with M.S

It is common in MS for the lesions to come and go. In other diseases that cause lesions they do not come and go.
by stillfighting
Fri Oct 19, 2012 10:15 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: FDA extends review of oral MS drug BG-12
Replies: 2
Views: 2698

Re: FDA extends review of oral MS drug BG-12

I find it strange they would do this to a drug with a good safety profile. They should come back and black box Gilenya.
by stillfighting
Sat Oct 13, 2012 9:38 am
Forum: Novantrone
Topic: Acute myeloid leukemia in MS patients treated with MTX
Replies: 1
Views: 6793

Re: Acute myeloid leukemia in MS patients treated with MTX

Well at least this was one drug my dr did not want to use! He said it was because of the heart problems it caused though. He said if I had one more really bad flare up he would consider it at half dosing. I think he forgot he said it.

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