Search found 8 matches

by jackson233
Wed Oct 13, 2010 7:58 pm
Forum: General Discussion
Topic: Question about ms progression...
Replies: 1
Views: 1063

Question about ms progression...

Can multiple sclerosis have progressive dibilitating effects even after a lesion isn't deemed active via MRI? ie. My first profound attack went after my legs, confirmed by a contrasted MRI... a repeat MRI now shows the same lesions, no change, but without inflammation? Yet, my mobility continues to ...
by jackson233
Fri Oct 08, 2010 4:12 pm
Forum: Daily Life
Topic: Wheelchair question
Replies: 3
Views: 1840

thanks Loca

Thank you for sharing your opinion regarding your Tilite and also for your encouraging kind words. Its weird, I too find some people go out of their way to be kind and helpful, while others stare at me like I have 2 heads. The oddest reaction I get seems to be from well to do men in their early fort...
by jackson233
Thu Oct 07, 2010 11:04 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: starting this week, few questions...
Replies: 7
Views: 5353

not sure...

Not sure exactly what it is but was told it is a high-dose cyclophosphamide (a la John Hopkins influence) and the monthly boosters are something they recently added to the protocol? Oh well, just starting to get anxious I guess.

How do you like the medi-port Crip, is it uncomfortable?
by jackson233
Thu Oct 07, 2010 10:25 am
Forum: Introductions
Topic: Hi there
Replies: 2
Views: 1002

Hi there

New around here, but not to MS. My dad was first dx in 1973 while walking the beat in Toronto. I was dx in April of this year with aggressive RRMS which squashed my work as a forensic physicians' assistant and long distance running with my GSD.

Great community here and lots of helpful insight!
by jackson233
Thu Oct 07, 2010 6:32 am
Forum: Daily Life
Topic: Wheelchair question
Replies: 3
Views: 1840

Wheelchair question

Wasn't sure the best forum to post this in, but I was wondering if any members here use a Tilite chair? Since my MS has really only taken its toll on my legs I am opting for and exploring the world of light weight manual chairs. I am definitely not ready for a motorized device, but accept that there...
by jackson233
Thu Oct 07, 2010 5:56 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: starting this week, few questions...
Replies: 7
Views: 5353

thanks

Thanks Cript, best of luck to you too! My protocol will be 5-6 days of infusions in hospital and then monthly boosters as an outpatient, which brings up a new question from me...

Are they likely to leave my Hickman Catheter in for my monthly boosters?
by jackson233
Tue Oct 05, 2010 12:21 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: starting this week, few questions...
Replies: 7
Views: 5353

thanks Axiom!

I'm actually having the treatment in Toronto by a neurologist who had training at JH. It's a last ditch effort to halt my progression. Thanks for the info... I think my infusions are stretched over 6 days but I am an inpatient for 8 days (lab work etc?). I have read surprisingly good things about th...
by jackson233
Sun Oct 03, 2010 2:25 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: starting this week, few questions...
Replies: 7
Views: 5353

starting this week, few questions...

Hi everyone, I am starting therapy in the coming weeks and had a few simple questions about the therapy. I understand that my 'infusions' will take place over a 7-8 day period during which I will be an inpatient at the hospital... how is the drug administered? Obviously intervenously, but central li...