Search found 109 matches

by Bender
Sun Dec 04, 2016 8:24 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Does it get better? Stomach pain & nausea
Replies: 4
Views: 3198

Re: Does it get better? Stomach pain & nausea

My stomach definitely isn't what it used to be, but it did get easier as time went on. I find that it really does have to be taken with food, and preferably not at the same time as other meds of mine, or anything else that'll contribute to my stomach being more acidic. It really is important to make...
by Bender
Wed Nov 05, 2014 10:34 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: first PML case on tecfidera
Replies: 4
Views: 3510

Re: first PML case on tecfidera

I wonder what drugs they were on before they started tecfidera?

it may have said I totally TLDRed, my doctor told me about this. that said I was on tysabri and did a course of ritxan so I need to continue to have JC antibodies tests either way.... yea!
by Bender
Wed Nov 05, 2014 10:26 am
Forum: Daily Life
Topic: I am wondering how much MS will limit my future
Replies: 7
Views: 3874

Re: I am wondering how much MS will limit my future

Whatever is going to happen, you should push on life as hard as you can now. the more ground you can gain before your problems catch up with you the better. If you get to the point where you're a manager/director etc... and have control over your schedule before you start getting troublesome problem...
by Bender
Thu Oct 30, 2014 9:21 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Do you have the ringing in your ears?
Replies: 4
Views: 1927

Re: Do you have the ringing in your ears?

I do but I'm not voting because my ears have been ringing for years...
by Bender
Tue Jan 28, 2014 3:04 pm
Forum: Mental & Spiritual Health
Topic: Schizophrenia?
Replies: 5
Views: 6629

Re: Schizophrenia?

I find that my brain is constantly changing here and there and there have been a couple big shifts in my day to day insanity that I think have to do with what in my brain is inflamed at a given time.
by Bender
Sat Jan 11, 2014 11:15 am
Forum: Drug Pipeline
Topic: Tecfidera
Replies: 46
Views: 12578

Re: Tecfidera

I'm on my third day of the starter dose today, I had some flushing (which as told by my Dr's office nurse was hotter than I would expect it to be) and some itchiness (with the flushing) but no other issues. (a little nausea, but this had more to do with my not being in the habit of eating three meal...
by Bender
Sun Nov 03, 2013 2:02 pm
Forum: General Discussion
Topic: Dizzy for 9 months – MS, Lyme, Migraines, Anxiety or VH?
Replies: 11
Views: 7634

Re: Dizzy for 9 months – MS, Lyme, Migraines, Anxiety or VH?

I haven't read most of this, but I suspect these are not professional medical opinions. Get one if at all possible. Consulting the internet for health information, even an informed group of people like this, is a bad idea.
by Bender
Sun Nov 03, 2013 1:53 pm
Forum: Introductions
Topic: Optic Neuritis and possible cause for MS
Replies: 156
Views: 15748

Re: Optic Neuritis and possible cause for MS

This is kind of out of left field but bringing up the eye changes I wanted to mention that I'd recently came across information on Heterochromia which I have/am of the eye color of/etc... my eyes changed around 7 or 8, and given the potential neurological causes for Heterochromia I thought it was wo...
by Bender
Fri Apr 26, 2013 4:15 am
Forum: Rituxan (Rituximab)
Topic: Very Successful Treatment with Rituxan
Replies: 5
Views: 5603

Re: Very Successful Treatment with Rituxan

I got chills etc... the first week or so and had my energy just flatline, but frankly I'm not sure I blame the rituxan for that. I'm at almost 3 months from my 2nd infusion.
by Bender
Sat Mar 02, 2013 9:58 am
Forum: General Discussion
Topic: Fecal Microbiota Transplantation - 3 cases of MS remission
Replies: 82
Views: 19228

Re: Fecal Microbiota Transplantation - 3 cases

I deteriorated significantly after taking a powerful probiotic supplement... I wonder what is in a fecal microbiotic transplantation?! poop, ideally from someone you are close with. i think it is is shown to work I would do this, but... it's kinda gross. That said, not as bad as having the sensatio...
by Bender
Sat Mar 02, 2013 9:57 am
Forum: Rituxan (Rituximab)
Topic: first infusion (RRMS)
Replies: 31
Views: 16283

Re: first infusion (RRMS)

Some activity here, BTW, but according to what I've been told the rituxan really starts working in month 2-3... hopefully it will I've had a lot of changes in my vision but none that passed the 24 hour mark (but it's like I can see my brain bubbling) also I am having either dropfoot or a really weir...
by Bender
Sat Mar 02, 2013 9:53 am
Forum: Rituxan (Rituximab)
Topic: first infusion (RRMS)
Replies: 31
Views: 16283

Re: first infusion (RRMS)

Hey Thirtyone. when I was on United healthcare I had this problem and was expecting a big fight moving over to blue Cross, but for bluecross I didn't even need pre-approval for this. If you can (and I know it's not possible sometimes) try to change your insurance, another company might have a better...
by Bender
Sat Jan 26, 2013 9:51 am
Forum: Rituxan (Rituximab)
Topic: first infusion (RRMS)
Replies: 31
Views: 16283

Re: first infusion (RRMS)

To note for the record, I've had some low energy days this week, but not the full blown flu like symptoms. Additionally my body temp has been low every day this week, but it doesn't seem to be infection related (I haven't had my thyroid checked in forever and it is probably that)
by Bender
Sun Jan 20, 2013 11:32 am
Forum: General Discussion
Topic: PML casaes now reach 323!
Replies: 11
Views: 2836

Re: PML casaes now reach 323!

I know three hundred sounds like a lot but with something like fifty thousand people r
Treated with tysabri it really is not very prevalent.
by Bender
Sat Jan 19, 2013 8:22 am
Forum: Rituxan (Rituximab)
Topic: first infusion (RRMS)
Replies: 31
Views: 16283

Re: first infusion (RRMS)

I wasn't but I didn't see the recommendation in any of the lit I saw for Rituxan.