This Is MS Multiple Sclerosis Knowledge & Support Community

I think they actually do want to leave you off treatment for a while so that numbers go back up I just meant Phase 2 does include an observation period at the end, which I have already completed. The study doctors will not be checking me any longer for increased MS activity. All other diagnosis at ...

Since I have already been through the observation period for the end of the study I can start the shots right away if I want to. Or whatever other treatment I decide.

Lyon, I think they expected the last MRI to already show MS activity but the docs and myself are blinded to previous MRIs so I really have no idea how long I have had no active lesions. Of course if I don't participate in the next part of the study I don't know if they would even have access to my n...

So I sure did not get on here keep anyone posted with how I was doing! I am feeling good. I finished the pig whip worm in October. NO treatment after that. I had an MRI the end of Jan. as part of the study I was in. The study was blinded but they got permission to give me the results of the last MRI...

I just copied this to my original post under Drug pipeline. MrB. I am going to take my chances and hold out for the next phase of the study. I know that I can tolerate this very well and I just feel if there is anyway shape or form for me to wait I will since studies are so important in providing ne...

So I sure did not get on here keep anyone posted with how I was doing! I am feeling good. I finished the pig whip worm in October. NO treatment after that. I had an MRI the end of Jan. as part of the study I was in. The study was blinded but they got permission to give me the results of the last MRI...

<shortened url>

Yeap that is me being all emotional!

Hi Everyone! Sorry I have not kept you posted on my progress. So far I have had some slight new tingling. I have to sit very still to notice it. I feel really great and have to say that if they ever get the second phase of this trial completed I will sign up for the third. I am also excited to say I...

Sorry I have not posted sooner! Hoping everyone is doing well! I have taken my treatment every 2 weeks since January 3rd. NO side effects. Sensation on and off on my face and teeth. I keep thinking am I really feeling.Yes I am. The most marked improvement I have has been my fatigue. I was sleeping u...

It has been two weeks already since my first treatment with TSO. I have had no problems to this point. I did have 1 day with 1 episode where I had to get to the bathroom rather quickly. :oops: Was this associated with my treatment? Who knows. It was not persistent and really was just one episode so ...

Apuman I am so pleased to hear you are doing well. Thank you so much for posting and keep us updated. I started my clinical trial today and am anxious for the next treatment in two weeks!!! I posted about it in the Drug pipeline since it is a phase II trial.

A parasite walks into a bar. The bartender says “we don’t serve your kind in here.” The parasite says “well you’re not a very good host.” Sorry I have to have some humor with all of this. So today was my first treatment for the helminth clinical trial at the UW of Madison. I was very nervous on the ...

Just wanted to say hello. New here. Started my trip into MS in July of 09. I did have steroid treatments because I was having issues with the side of my face and tongue. I had one lesion on my brain stem and one on my brain. After finding a new doc, did not like the one I initially had, I waited 6 m...

You might or not be aware that a friend at the University of Wisconsin/Madison is on the phase II using the T suis helminth against MS and although it's blinded there are good reasons to think that he's finding good results.....despite the myriad of reasons NOT to think that good results would be f...