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Thank you soooooo much
You put into words what I have not been able to. That's it!!! I seem to not be able to explain anything the right way but that is so it...between the toothache in your bones and the electrical feelings.
I love this site
I know I'm not alone

I'm having a heck of a time describing my MS pain to anyone. I really cannot seem to explain it well. Can anyone please explain the type of MS pain they are having, location and what you take for it? I'm really trying to get my message across to the docs but I'm failing miserably and being placed on...

P, Thanks for writing me I did called Shared Solutions and nothing has changed with them. They seem to rattle the same mumbo jumbo they always do and it's never helpful in anyway. I just give up on them period. I'm seeing my Neuro next week and will talk to her again because I simply cannot do this....

Hello, It appears the dates are fine and it was in ice packs and all when it was shipped. I suppose I can called the drug company to see but I have not taken another shot since it all went down. I cannot go through that daily. Have either of you ever had any side effects to Copaxone of any kind? Blo...

Hi Waterbear....
Is she off the meds now? I cannot believe how much different I'm reacting to this drug vs the initial time I was on it.
Thanks for the info.

Hello I was on Copaxone before being placed on Tysabri. I recently tested positive for the JC Virus so they have taken me off Tysabri and placed me back on Copaxone. When I was first on Copaxone, I was not sick with the meds. I had bad site reactions and all and initially felt a little cruddy but th...

Hello I was on Copaxone before being placed on Tysabri. I recently tested positive for the JC Virus so they have taken me off Tysabri and placed me back on Copaxone. When I was first on Copaxone, I was not sick with the meds. I had bad site reactions and all and initially felt a little cruddy but th...

Hello Has anyone here experienced really terrible emotional outbursts of anger and crying and not being able to control it then suddenly it goes away and it's as if you can hardly remember what it was about but when you are in the middle of it you cannot stop yourself no matter what you do and it t...

Hello. Oh thanks so much for all your input to the both of you. Yes I work fulltime, as a Nurse but I do not know much about MS..on purpose. I just try to take it as it comes because it's been so overwhelming. I will occasionally scale back on my hours some when I'm in a spell of sorts which I think...

Thank you for your input My pain is more nerve/bone pain and I have tried the vitamen regiment but it only did a temp relief I am on Vit D because mine drops below 7 all the time and when it's up I do feel better but my pain is mostly nerve pain and deep bone pain. I have Lortab for bad pain which I...

Hello,

What does everyone here use for MS Pain...

Also does anyone use anything narcotic or just OTC meds and or the common MS drugs for pain ( Baclofen, Neurontin? etc)

Thanks for the input

I had no weight gain from Tysabri but did with steriods. They are a culprit in weight gain but so are some others meds commonly used by MS patients.

I hope this helps

Im so sorry for your news

I just tested postive for JC Virus and show signs of decline but not sure what is happening yet. I see the docs Feb 23. Did you have a positive JC test? How did they determine it was PML? Was it the MRI?

Praying for you.

Thanks for your thoughts everyone and the link. I appreciate it