This Is MS Multiple Sclerosis Knowledge & Support Community

Did anyone see the programme aired on the 7/3/11 re CCSVI.
I am utterly angered by the way EHC and CCSVI have been portrayed by the BBC . Is there just narrow mindness and lack of faith out there?
Comments please !

So one month on and where are we. All improvements have remained to date. Emma has a very distinct link between eating and degradation of eyesight. The improvements have remained but if Emma misses a meal by an hour or so the sight regresses only to improve once she eats. We're open to suggestions ...

Asher wrote:ASH10, also consider the possibility (not fact) that your symptoms have nothing to do with the procedure and the they just happen to coincide.

Definately not! I was practically symptom free, it's prob just nerve damage but speaking to consultant.

Some possibilities could be that the stress of the procedure triggered an MS relapse (possibly see your neurologist); that the veins restenosed immediately or formed a clot that blocked it worse than it had begun, hence the worse symptoms than you started with (see an IR asap for a doppler ultrasou...

ASH10, you might be interested (if you have not already done so) in tracking your experience in the appropriate 'sticky' ie post here if ccsvi liberation treatment did not work for you. also, may i ask what symptoms you were dealing with prior to your procedure? I was told not to expect too much ch...

I had my Liberation procedure on the 27th Dec 2010, in Edinburgh right after it both my hands were tingling , and have stayed that way ever since, and have became quite sore, the tops of both legs are also tingling on and off, I was practically symptom free pre procedure. I am very despondent and ne...

vivavie wrote:Welcome ASH and congradulations!

Don't let eric's comment shy you away, he has been rude to many recently... me included.

Keep us updated
Bonne annee
S

Thanks yeah there is always one isn't there?

eric593 wrote:Congratulation!

Just FYI - you had a CCSVI TREATMENT on Dec 27. CCSVI is the CONDITION of vein abnormalities that was treated, CCSVI is not the treatment itself.

I WASN'T AWARE THAT i HAD TO BE SO SPECIFIC

CCSVI carried out on the 27 Dec 10 at the Edinburgh Clinic Scotland. The procedure went well with findings of valve malfunctions on both the left and right side, the right side was stubborn and required double ballooning, the azygous vein was very narrow but opened well. The staff and consultant Don...